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Children - Special Needs Community

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onset myopathies

by marialou, Sep 11, 2009 09:46PM

my 14 yr old daughter has a rare myopathy,centronuclear myopathy its called. ive searched high and low for answers so about this an have never found them. is the onset for this myopathy simular to others and does anyone have any insight or experience or information that could help shed some light.

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