Aa
Autoimmune urticaria anyone?
Looking to make friends with others who have autoimmune urticaria and share stories, symptoms, food for thought, etc. Anyone game?
hi Dani.. I just got this horrible condition confirmed yesterday. I wake up each morning dreading to see how much of my body is covered in hives that day. I thought it could be my new apartment I moved into (only a month ago), and although I haven't ruled that out, your information makes a lot of sense. I had blood tests done yesterday and awaiting results but will bring this up to the doctor and will buy this herb. Thank you sooo much. I don't even want to go out in public.
Hi everyone,
My name is Tigran and I am writing this on behalf of my wife Taguhi who suffers from Idiopathic Urticaria since 2006. She is 37 years old.
I am very glad we came across this blog. We were always thinking that her case was unique and unusually severe but after reading many of the posts we realized that it is not so. Many of you guys describe exactly the same symptoms in terms of severity and longevity.
She is a strong person that learned to live with it and handles it much better than I would probably do. The only thing that bothers us a lot is that throughout past 7 years a number of her hive "attacks" have led to anaphylactic shock with her blood pressure dropping to 80/40 sometimes even less. She has been rushed to emergency 10-12 times since her symptoms begun. We have also noticed that her blood pressure tends to dangerously drop even if her hives are mild in terms of area they cover or itchiness. We have Epipens everywhere - at home, in my and her cars, one in her purse and another one at her work.
If any of you experienced the same please share with us.
P.S. Please, pardon my English. It is my second language and I did my best to make my post readable :).
Also, I wanted to share what the last doctor, a very nice lady, we saw at UCLA Medical Center. I don't remember her exact words but what she said was that they (doctors) have no idea what causes idiopathic urticaria, and the person who finds it will be nominated for a Nobel Prize. And the advise she gave to my wife was - admit it, try to live with it and be happy.
My name is Tigran and I am writing this on behalf of my wife Taguhi who suffers from Idiopathic Urticaria since 2006. She is 37 years old.
I am very glad we came across this blog. We were always thinking that her case was unique and unusually severe but after reading many of the posts we realized that it is not so. Many of you guys describe exactly the same symptoms in terms of severity and longevity.
She is a strong person that learned to live with it and handles it much better than I would probably do. The only thing that bothers us a lot is that throughout past 7 years a number of her hive "attacks" have led to anaphylactic shock with her blood pressure dropping to 80/40 sometimes even less. She has been rushed to emergency 10-12 times since her symptoms begun. We have also noticed that her blood pressure tends to dangerously drop even if her hives are mild in terms of area they cover or itchiness. We have Epipens everywhere - at home, in my and her cars, one in her purse and another one at her work.
If any of you experienced the same please share with us.
P.S. Please, pardon my English. It is my second language and I did my best to make my post readable :).
Also, I wanted to share what the last doctor, a very nice lady, we saw at UCLA Medical Center. I don't remember her exact words but what she said was that they (doctors) have no idea what causes idiopathic urticaria, and the person who finds it will be nominated for a Nobel Prize. And the advise she gave to my wife was - admit it, try to live with it and be happy.
Hi Roberta,
My wife has idiopathic urticaria for about 7 years now. She has been on and off antihistamines since 2006. She has also been treated with prednisone couple of times. Believe it or not, every time she takes an antihistamine (Clarinex, Xyzal, Zyrtec or Benadryl) her symptoms worsen considerably.
You are probably asking: Why would she take it if she knows it is going to make it worse? The answer is: Because we don't know what to do, and that is what several doctors told us to do.
My wife has idiopathic urticaria for about 7 years now. She has been on and off antihistamines since 2006. She has also been treated with prednisone couple of times. Believe it or not, every time she takes an antihistamine (Clarinex, Xyzal, Zyrtec or Benadryl) her symptoms worsen considerably.
You are probably asking: Why would she take it if she knows it is going to make it worse? The answer is: Because we don't know what to do, and that is what several doctors told us to do.
Dani1205 you just descibed my life. I'm scheduled to got to the Mayo Clinic on 6/10, this will be cosly Dr trip for me but I cant put a price tag on this. I have seen aaprox 12 Doctors and had tons of meds like your given. 6 years of this pain and chronic itching. I know there has to be a reason I just need the right Dr to find it
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