My son is 1 years old and has hypoplastic left heart syndrome. He is post Glenn with a BT shunt and a pulmonary artery band between glenn shunt and BT shunt. He has previously been on ECMO and has had 4 heart surgeries as well as the Nissen with G-tube placement. Currently the problem is that when we feed him through his g-tube, his oxygen saturations drop between 50 and 70 (his normal oxygen saturations are 75-85). He has done this in the past when we first went to bolus or bulk feeds from continuous feeds. The only thing that has changed recently is that we have increased the amount of feeds he gets from 4 oz to 6 oz. Is this normal? What is a normal drop range while feeding? What could be causing his drops...is it the increase in feed amount? Any input you can give on this would be greatly appreciated!
This is not a medical situation with which we are familiar. However a possible explanation for the fall in saturation would be recurrent aspiration, despite the Nissen procedure. The chance of this would be increased with higher volume feedings. The degree of risk for this can be assessed by a two-step swallowing provocation test (S-SPT). We cannot comment on the normal "drop range." You should pose this question to those prescribing and supervising your son’s care.
The problem is that his cardiologist in Chattanooga told me that it was a problem with him refluxing and then aspirating due to his Nissen coming undone and that we needed to get our pediatrician to set up testing. So we had a chest x-ray with nothing abnormal showing up as well as a barium test where the barium was put through his g-tube and we watched as none of it went up his esophogus. His tummy empties well and the food moves through his intestines well. So it's not that. It's a puzzle and even when he was still in the hosptial at Vandy his cardiologists there weren't sure why it was happening. So I just thought I'd put it out there to see if anyone else had heard of this happening. Thanks for taking the time to respond!
Copyright 1994-2016MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.