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one third of lung function
by little_weed, Oct 20, 2009 04:05AM
Finally, after months of waiting for the full results of ct scans with PFT's, I have the startling information that I have lost two thirds of my lung function!!!
My pulmonary specialialist doesn't "do" staging for emphysema, and will not be drawn on a prognosis, because at this stage they cannot measure the rate of decline.
My FEV1 indicated maybe mild to moderate, but the ct scans showed "significant emphysema", and whilst he says that the FEV1 is good, the Volume/Diffusion/Gas transfer etc show the actual extent of the emphysema in the upper lobes, and that I am working on one third capacity.
I am being referred for possible LVRS, which is usually done at a worse stage, but he thinks the time to do it is now.
Can anyone give me any info on what they think my staging would be if given one? Severe or Very Severe??!! Or am I still "moderate" as I had been led to believe early on in the year.
Every bit of research I have done has been in terms of "staged" emphysema, so cannot quite get my head around
33 and 1/3 % lung function, with a FEV1 of 84% predicted!
What do you think, guys???
My pulmonary specialialist doesn't "do" staging for emphysema, and will not be drawn on a prognosis, because at this stage they cannot measure the rate of decline.
My FEV1 indicated maybe mild to moderate, but the ct scans showed "significant emphysema", and whilst he says that the FEV1 is good, the Volume/Diffusion/Gas transfer etc show the actual extent of the emphysema in the upper lobes, and that I am working on one third capacity.
I am being referred for possible LVRS, which is usually done at a worse stage, but he thinks the time to do it is now.
Can anyone give me any info on what they think my staging would be if given one? Severe or Very Severe??!! Or am I still "moderate" as I had been led to believe early on in the year.
Every bit of research I have done has been in terms of "staged" emphysema, so cannot quite get my head around
33 and 1/3 % lung function, with a FEV1 of 84% predicted!
What do you think, guys???
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