Thank you.
I cant get into see a pulmonologist till May 30th but you know I'll be calling to see if there are any cancellations before time.
I have a 2 o clock appt for a breathing test and then 3 o clock to see the dr. I had no clue I have lung disease.
It just keeps piling up.
sounds complicated. You can always have the doctor go over the test results with you. You can write down any questions or concerns you have...or of course like Hector says skip it as it is what it is and all that jargen isn't going to change anything. Can we remember to LIVE, LOVE, LAUGH? Take care dear one. You are not alone we are all on this ship together. I can think of a name of a famous ship but I'm not going to say the name of it. kelly
LOVE IT HECTOR.....think I'll skip it too.
Hi Paula!
I am hanging in here one day at a time.
☆★☆☆★☆ I'll cross that bridge when I come to it. ☆★☆☆★☆
I couldn't agree more!
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More words of wisdom for dealing with serious medical issues...
‘Live one day at a time’
‘Put one step in front of the other’
‘I did the best I could do with what I knew, but when I knew better I did better’. -Maya Angelou
Knowledge is power.
"YOU NEVER KNOW HOW STRONG YOU ARE UNTIL BEING STRONG IS THE ONLY CHOICE YOU HAVE"
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From the ‘Things I learned from having cancer’ file
Death is way too complicated – I think I’ll skip it. ;-)
Hector
I've requested an appt to see my hepatologist earlier. Will call the pulmonoligust this week also.
Just wondering how this would affect my chance of a liver transplant. Guess I'll cross over that bridge when...
Thank you Hector..how are you doing?
Still offering up my prayers. Paula
When I saw the word masses..that concerned me..also the fibrosis in the lungs. I plan on calling my hep on Monday. I know there ate two types of this disease, cell and fibrotic and of course I have the fibrotic. I know a lung transplant is the only cure for it. I will be calling them on Monday and in the meantime will write to Dr Mathur. I'm on prednisone now.
Of course, its maddening when your test results come thru and the office is closed for the weekend. Its always best to wait till Monday to post them unless you get happy news which is not what I get alot of.
I wish this was better news. The last MARCH US I had mentioned 3 total cysts, 2 in left lobe msrg 2.4 and 1.9 cm and 3rd in rt lobe 2.1 but they called them hepatic cysts.
what about the masses?? and the non specific interstitial pneumonitis lungs? UGH,,,
I did post to Dr S.
Thank you...Paula
That doesn't sound too bad. Early cirrhosis, but I think you knew that already. Im surprised about the varices though because I always though the spleen would be enlarged with varicose. You should ask the doctor in the liver transplant forum
The masses?
"1.8 x 2.0 cm cyst in the left hepatic dome."
Liver cysts occur in approximately 5% of the population. However, only about 5% of these patients ever develop symptoms. The vast majority are benign. It will be watch during future imaging studies.
"A few additional subcentimeter low attenuation lesions which are too
small to characterize are noted in the liver"
What type of lesions they are can not be determined at this time. Most lesion have to be 1-2 cm to make a diagnosis. Since you have cirrhosis you will need 6 month cancer surveillance and all growths will be monitored to look for any growth over time.
Of course your hepatologist should explain all of this to you. Ordering a test and developing a diagnosis is only part of their job. The other very important part of their job is to answer the patient's questions.
Only your hepatologist can say what test result mean in the context of your health history and current status as they are the only ones privy to that knowledge. While is can be good to ask others about general situations, each persons circumstance is unique and can't be fully address by others.
As long as you have on going imaging surveillance I would worry about them. Many people have growths in their livers, but since they are benign, they never know it. The other factor in your favor is that liver cancer is about 3 times more common in men than women.
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HONEY COMBING WITH SPARING OF THE COSTOPHRENIC ANGLES, LIKELY FIBROTIC, NONSPECIFIC INTERSTITIAL PNEUMONITIS
(INTERSTITIAL PNEUMONITIS) = fibrosis/scarring of the lungs.
Chest imaging needs to be performed to further assess the scarring of your lungs. Caused by Sjögren syndrome? An autoimmune disease that can affect body organs such as the lungs.
!!!It is very important to have followup with a pulmonary doctor doctor!!!
Be proactive. Don't wait. Get an appointment for the study ASAP.
While I have no personal experience in this area I do know that honeycomb lung pathology can be a very serious condition!
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You can write in the Autoimmune Community to Dr. Kokil Mathur and she can give you more information about HONEY COMBING WITH SPARING OF THE COSTOPHRENIC ANGLES, LIKELY FIBROTIC, NONSPECIFIC INTERSTITIAL PNEUMONITIS .
Please follow up with a chest scan or Pulmonary doctor soon.
Take care.
Hector