cirrhosis

[kulmason]

My mother was diagnosed with cirrhosis. She lives in Ukraine.  Local doctor said that if she doesn't get right treatment than she has one more year to live. Although he suggested that very effective medication is available in USA . Can anybody help me?

[flyinlynn]

I suggest you try the Hepatitis B Philippines group

http://www.medhelp.org/forums/Hepatitis-B---Philippines/show/1517

Also we are not doctors here or medical professionals we are patients dealing with the effects of your conditions so no one here can diagnose you. For medical advice and diagnosis your best resource is your doctor

Best of luck to you

[ralph2014]

Your labs look good, but Platelets can tell a story.  Also ultrasound isnt the best for checking the liver, A Fibroscan is a much better tool

[heprob]

from philippines
i need somebody to help in my case.. these are my symptoms ,every after taking a bath i fel intense itching,sometimes at night or day i had itch in my finger neck and toe,i got blood on my saliva sometimes freshblood when i woke up or sometimes i spit blood with my saliva or when at work when i goto cr ,i have abdominal pain im right ribs, dry mouth, sleepless,muscle pain ,wasting , and athritical pain.....and im afraid of having liver cirrhosis because of this symptoms, corrrect me if im wrong with it.. as ive heard and observe with this forum of having the same illness.. i dont know what im going to do because the doctor's ddnt give some med of this ,as what they have seen on my lab result  which is normal status ,

hbsAg w/titer (cmia)  --  4111.63      date  : 10/20/14
hbsAg w/titer (cmia)  -- 3988.29       date  :  1/02/15
my hvdna                    23 iu/ml 134 copies/ml ..  date  :  1/28/15

by 10/20-2014

protohrombin time
pt               12.80 sec 10-14               sgpt 25,sgot 24
  %activity      86.5                               alkaline phosphatase 97
   INR             1.06                               albumin    4.77,globulin   2.40
   control 12.00                                    direct biliburin   0.35
    control activity  109.5                       inderict biliburin 0.57
                    
1/16-2015
pt               11.80  sec 10-14               sgpt 39,
   INR           0.98                                 albumin    4.9,
   control 11.80                                    direct biliburin   0.36
    control activity  70.9                         inderict biliburin 0.53

by 1/28/15
my hvdna             23 iu/ml 134 copies/ml ..  date  :  1/28/15
my sgpt 29

but im getting worst time after time of what i feel right now , and the doctor hepatology
ddnt give me any med ,even i explain the sypmptoms which is geeting worse..she advice me to go ct scan to probe what was really the cause
my symptoms which bothering me..
                            
earlier at first i thought because of my gallstone 8 mm @ my ultrasound 5/10/2013, then it happens the pain i gone because i used to flush it as ive heard others do, then go back drinks some beer .then,  the mild pain back  then ultra sound again 10/25/13 the result reduced into 4 mm,which i wonder.. ultra sound again 1/02/15 to the other lab, and they found out it turns to gallbladder polyps ... the rest is normal the liver the spleen...

i need some of advice ,who experience like this
i apologize of my english the way of delivering my grammar...


thank you ..

[flyinlynn]

Hi HBV123

I am guessing from your name you hav hepatitis b

There is a group for hep b Phillipines

http://www.medhelp.org/forums/Hepatitis-B---Philippines/show/1517

They may have a lot more help there.

This is the cirrhosis group have you been diagnosed with cirrhosis? If you have guest ions about diet and living heatlhy with cirrhosis it does sound like you are doing your best as far as eating well.

Good luck to you
Lynn

[hbv123]

hello everybody please help us here in the philippine many of us here suffering from liver problems, please give us advice and how to treat this.

racel

[hbv123]

hello lynn, i have liver issue,and suffering pain at my right upper abdomen. the pain takes a time, but i can stand with it.. please advice me what to do. i was vegan now, eating lots of fruits and vegetable, sometime i juice in the morning.. i also take milk thistle, together with gluthathione and vitamin C.. also i took Phyllantus niruri(chanca piedra) and indian herbs.. please reply me soon you get my message.. thank you, hope we get well soon..

racel

[flyinlynn]

Hi Hector

Thanks for a very thorough response you have been missed. Happy as well so see you checking in hoping you are feeling better.

Lynn

[Livelife777]

You have been given excellent advise.  If you can elaborate more regarding your moms situation we can further help you.  
No one can determine what your life expectancy will be.  With cirrhosis especially, there are so many variables and anyone's condition can change with proper guidance and help.  Having Cirrhosis is not a death sentence by
any means.  Many of us on this forum are cirrhotic leading very healthy productive lives, including me.  
Keep us posted on your mothers condition.
Best wishes
......Kim

So happy to see you back dear Hector.

[HectorSF]

'My mother was diagnosed with cirrhosis'.
'Local doctor said that if she doesn't get right treatment than she has one more year to live'.
'Although he suggested that very effective medication is available in USA .'

I am sorry to hear that your mother may have cirrhosis of the liver. Hopefully this is not the case as you learn more of the details.

I just wanted to add a few notes of clarification that may help you to understand the medical meaning of cirrhosis of the liver and its prognosis and any relation to the hepatitis C virus which in certain instances can cause cirrhosis of the liver typically only after many decades of chronic infection by the virus.

More medical information such as biopsy report, blood levels such as Bilirubin, Creatinine and INR (MELD Score) which indicate the liver's ability to perform its functions would be needed. Also any typical signs of advanced cirrhosis (which would indicate someone's liver is failing) such as Ascites (fluid accumulation in the abdomen or typically the lower legs or feet, bleeding Varices (vomiting or defecating blood) or Hepatic Encephalopathy (mental issues caused by the failure of the damaged liver to filter toxins from the blood which can cause stupor or coma) are typical signs in persons with advanced decompensated cirrhosis who typically have less than a year to live without the option of liver transplantation. Even with advanced irreversible cirrhosis a liver transplant can still allow a person to continue living if that option is available.

Hepatitis C is a viral infection that can cause liver cirrhosis but typically only after 20-40 years of chronic infection which would make hepatitis C infection gotten only a couple of years ago during surgery a very unlikely cause of her cirrhosis. Other typical causes of cirrhosis including years of alcohol abuse, chronic hepatitis B infection or various hereditary diseases.

So I you can see more medical information is needed to determine what is really happening and what steps may need to be taken to manage any liver disease your mother may have.

Hopefully your brother will be able to clarify these issues and your mother's health may not be as problematic as it may appear at first glance from the few details you have heard about.

Good luck to you and your mother.
Hector

[kulmason]

Thank you Lynn for your attention to my concern.  I'll ask my brother to send all available information to me and I'll post it.  I was in shock first when I've heard.  My mother was operated couple of years ago for other reasons and she was infected with hepatitis C i think. ...But first I'll gather information from Ukraine.  Thanks again. ..
Igor

[flyinlynn]

Hi so sorry to hear about your mother. Do you know the cause of her cirrhosis? Could it be hepatits C?

There are new just recently approved medicines available here in the U.S. and soon to be in many other countries for hepatitis C if that is part of your mothers medical situation.

Do you know about any symptoms of cirrhosis she is having? Is she under the care of a liver specialist at a transplant center? Is she eligible for a transplant?

There is not really a way to predict how long a person suffering from advanced cirrhosis will survive at least until they are extreamly sick and then it would be days to weeks.

Saying she has 1 year is somewhat unusual especially without knowing more about her symptoms and the cause of her illness.  If for example it is hepatitis c I have lived knowing I have hep c for 24 years and I was diagnosed with cirrhosis 7 years ago. A person can live for many years with cirrhosis.

Try to get more information about her status and we can try to help.

Lynn