Congestive Heart Failure Community
Anyone, not eligible for heart transplant due to multi-organ diseases
About This Community:

This patient support community is for discussions relating to Congestive Heart Failure (CHF).

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Anyone, not eligible for heart transplant due to multi-organ diseases

Today I saw a Heart Transplant / Heart Failure Specialist and she stated that I did not qualify for a heart transplant because I have a form of sickle cell with beta-thallasemia (blood disorders), shrunken kidneys (probably from my diabetes) Diabetes also caused gastroparesis, bladder paresis, and peripheral neuropathy. Not not only did she tell me I'm not eligible for transplant but I'm not eligible for assistive devices (LVAD). What I am able to do is trade in my Medtronix Secura ICD for a bi-ventricular ICD, some procedure when they go into the right side of the heart through the neck not sure what this is for, but she did say we are in no hurry to do that procedure. We changed my meds from Toprol XL 125mg 2xday to Coreg 12.5 2xday and lasix 120mg a day to torsemide 100mg 2xday. I have SOB, swelling (gained 8lbs yesterday!) My EF is at 30% but both of my ventricles are stiff, so I have diastolic and systolic heart failure. My EF has been steadily going down over the last year

So my question is this: are there other people out there with heart failure that do not qualify for a transplant due to other health problems? and how are you handling it? what are you doing to prolong your life? share some trade secrets :)
Avatar_f_tn
You may want to consider trying to be reevaluated by a different transplant team. My daughter had several different health issues: a stroke at 10, a coagulopathy, juvenile rhuematoid arthritis as well as decreased kidney function and restricitve lung disease and she was accepted for transplant. try a different center.
Blank
Post a Comment
To
Blank
BloodPressure Tracker
Track your Heart Condition
Start Tracking Now
MedHelp Health Answers
Recent Activity
Avatar_f_tn
Blank
orsi92 emily92 Comment
Aug 02
168348_tn?1379360675
Blank
ChitChatNine is happy! Comment
Jul 22
9310208_tn?1408668374
Blank
deannagrimsley is finally 9 weeks :) Comment
Jul 14
Congestive Heart Failure Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank