3 year old diagnosed with ulcerative colitis

Hi.  We are currently in Childrens Hospital for 16 days now with our 3 year old daughter who was diagnosed with UC since we have been here.  Started out with bloody diarhea (diarrhea) , went to specialist who admitted us same day of appt.  Her labs came back with inflammation markers up, hemaglobin down and white blood count up.  We did Ct abd/pelvis ( couldn't even see appendix since colon so inflammed), abd xrays and finally a endoscopy and colonoscopy ( colon so imflammed dr was able to go in a slight bit get biopsy and get right out, afraid to perforate ) which biopsy came back as non specific.  Dr is telling us they also ordered blood panel and they are diagnosing her with UC.  Problem:  we are being rushed into starting Remicaid, we have tried Zosin, Zantac, Steroids she is still on , TPNs and Lipids , Azulfidine, and flagyl.  We were doing better for a few days and blood was minimal in stools, started on liquids got worse, put her back as NPO then started Flagyl and blood got even worse.  We rec'd second opinion yesterday and that Doctor believes we need to give her more time before resulting to Remicaid and try Imuren which we drew blood for yesterday and will take a week before we know if she will be able to metabolize this drug.   They pulled all but steroids, TPNs and Lipids until results in.  I contacted Remicaid directly which stated that they have no studies of safety or effectiveness in children under the age of 6 or for UC and that my Doctor would have to request literature for any known cases of this being used to treat children younger than 6.  We are questioning whether they are missing something.  Please give us your feedback on a child this young.  We have searched and reached out to others in the medical community.  I work in radiology and have my Doctor and his Doctor wife exploring other options and speaking to specialist who may be able to provide us with more options or hope for our daughter.  

Thank you,
Jadyns Mommy and Daddy