Answer to your question re: new type of iron

Hi,

Thanks for the response.  I have had numerous investigations.  I was told today that I probably have 5q depletion MDS and small bowel telangectasia. I always have gastric and duodenal erosions on gastroscopy and pill cam showed duodenal erosions as well. I refused the double balloon push enteroscopy.  I also have Barretts oesophagus (no dysplasia) that oozes blood very slowly.  I have had a number of colon polyps removed (no dysplasia) and I have diverticulosis.

I tried 2 different types of iron tablets over the course of a couple of months, I tried to persevere with them but the skin burning and blisters were terrible.  My doctor took a biopsy which showed mast cells and indicated a lichenoid drug reaction.

I told the hematologist that I would have to be very brave to agree to another iron infusion, but he seemed to think that he could give me medication that would make it safe.  I don't want to be non compliant, but I'm scared.

Thank you.

Chirley

[arachnaphob]

Hi,  i'm just posting again in the hope of a response.  The time that I have to make a decision about having another iron infusion is getting closer.  I have an appointment with the haematologist next week and i'd like to have more information and opinions than I have now.

Thanks

Arach