This forum is an un-mediated, patient-to-patient forum for questions and support regarding
Crohn’s Disease and
Ulcerative Colitis issues such as: Abdominal Pain, Arthritis, Bleeding (Rectal), Blockage (Intestinal), Delayed Development (Children), Diagnosis, Diarrhea, Fissures, Gall Stones, Growth - Stunted (Children),
Kidney Stones, Living With and Managing Crohn’s, Malnutrition, Medications – Drugs, Nutrition, Pregnancy, Protein Deficiency, Research, Skin Problems, Stress, Surgery, Symptoms, Tests, Treatments, Ulcerations – Sores, Weight Loss
If you require Dr. Pho to answer your queries, you need to post on the main Gastroenterology forum and pay the $15 fee. He only takes about 3 questions daily, so you may have to try a few times.
My only advice would be to get your symptoms properly diagnosed: "likely to be Crohn's" is really insufficient for you to get appropriate treatment. As far as I am aware, and I have had intractable Crohn's for 40 yrs, the only definitive method to diagnose Crohn's is by doing a colonoscopy on the large intestine and/or an upper endoscopy of the small intestine and taking biopsies of any suspicious tissue. I have not heard of "double balloon enteroscopy", but this could just be different semantics in different hospitals/countries. As you have already had a colonoscopy and endoscopy, and I assume biopsies were taken, I don't really understand why the diagnosis was inconclusive.
I am sorry to hear of your multi-factoral problems and hope you get the help you need soon.
Tae care,
Liz.