This forum is an un-mediated, patient-to-patient forum for questions and support regarding
Crohn’s Disease and
Ulcerative Colitis issues such as: Abdominal Pain, Arthritis, Bleeding (Rectal), Blockage (Intestinal), Delayed Development (Children), Diagnosis, Diarrhea, Fissures, Gall Stones, Growth - Stunted (Children),
Kidney Stones, Living With and Managing Crohn’s, Malnutrition, Medications – Drugs, Nutrition, Pregnancy, Protein Deficiency, Research, Skin Problems, Stress, Surgery, Symptoms, Tests, Treatments, Ulcerations – Sores, Weight Loss
Our 12 year old daughter has Crohn's - yes she did get blood in her stool but it was "red" not dark - that was telling us she had ulcers or anal fissure which is still there but not flared up as she's on heavy duty anti biotics - she'll be going on Cimzia trials here for pediatrics in Ontario....
The doctors and tests will tell you which disease you have, ask for a Barium CT Scan (where you drink YUCKY powdery type drink that coats the intestines and travels down into the colon, takes a few hours but they can see inflammation that way...) and/or colonscopy can also see if there is a) inflammation b) ulcers c) polyps and generally the well being of your intestines and pin point better where the disease is...
the doctor said she will experiment with me a little and put me on cortisteriods for 1 week to see if they would help, she thinks it mayb crohns or UC, anything but cancer im hoping for to be honest...
Been on these cortisteriods for like 5 days now, and ive noticed my weight has defo maintained or increased.
The stomach pain/cramps seem to have improved slightly but the pain does defo still comes and goesm also not had any blood (visable) for 3 days.
Anyone else got any comments or advice on my situation?? please post need as much help as possible, going out me mind here.
Thanks in advance
My stool sample test still aint back.
I have been booked in for a barium enema on 11 august 3pm, can this indicate crohns?????
Also can someone answer this question for me please, with crohns do you have to have the runs?? as i have had loose stool and hard still but not really runny, been going about 3 times each day maybe more, and had the weight loss.
Can some1 answer that for me please
at the moment, i can stil feel a little pain on right abs butnot as bad as normal, ive only had 1 stool today but it felt huge but when i looked at it it was tiny.
You won't know for sure what's going on until they run some tests on you. I know the waiting is hard but you should find out soon and just finally knowing what is going on will be some relief. I wish you the best! Come back and let us know how the tests turn out. Take care!
please some1 reply to me
I also have a white yellow coat building up on my tonuge, i heard with CD your immune systems messes up and you get alot infections , is this the case?
As for your immune system, i'll try to explain my understanding of crohns. it's caused by your immune system attacking point/s on your digestive system, it can be anywhere from one end of your body to the other. this is what causes the inflammation. this why as treatment patients can be described a variety of drugs that supress the immune system to various degree eg steroids, 6mp, azothiaprime, infliximab. This obviously makes you slightly more at risk of catching infrections. i would say though from my experience, i became so fearful at the start and thought everythng was related, even if it was just a coincidenced. even after you get diagnosed, your body does things and you wont entirely know if its crohns related.
My advice would be to try and put it to the back of your mind and relax before your barium next tuesday. stress really make crohns (if that's what you have) worse and you dont want to be worrying! from the description of the treatment they're giving you and your symptoms, it seems like they're heading in the direction of diagnosing crohn so hold tight, they diagnosed me from a barium.
oh and acid reflux or heart burn - i've got no idea. i sometimes get heart b urn, usually related to what i've ate but never considered it to be a sympton of my crohns. i've always got it after drinking irn bru, i dont think i can blame that on my crohns! hehehe :)
good luck buddy, stick in there x
just i feel like im getting no where, this white/yellow tongue doing my head in also, like my immune system just isnt workin at all.
The pain is strange, it feels sometimes its from my liver, then the lower right, then over the left hand side, do you get this??
also i had a liver function test the other day and the reading was alittle high
Billirubin 24
ALT 48
As for your results, i've got no idea what that means!
have you ever known this to be another symtpom on cronhs??
it sounds daft but i cant wait to be told what i have, in my eyes i am dying and im waiting to be told. I hate feeling like this,i have young children aswell :(
Best of luck
Apart from them i aint been given anyting else , the pain in my abs comes and goes but seems to move around , not always in same place etc ... Im going to the loo about 4 times per day and having loose stools.
The whole thing is just one big worry for me, i dont know what i have, even thinkning i have cancer.... just dont no what to do, totally losing it :(
dont no what else i can do.. the steriods did help but she said i can only go on them for 1 week as the can be bad for me.
What did the dr say they were looking for?
I would call the dr office about Wed. of next week and ask if the results are in.
weight loss has stopped and i have gained a far bit