HELP PLEASE!

tbh i don't know which way to turn for help now. i have had ulcerative colitis for 5 years now and it is getting worse and worse. i haven't responded to any medication or changes in diet that i have been given and i have been taken off the books at my local hospital because i couldn't make it to appointments. (seeing as i only got seen once every 4 months ish and i was ill or at college/work all the time it isn't really surprising that i couldn't make it in).
so now i have been suffering with it for a whole year without any sort of medical help and i am now at the stage where it is affecting every aspect of my life and i cannot live like this anymore.
does anyone have any information about where to turn/what to try next? because i really am at my wits end now...