Help for my daughter please ...

[dleeblee]

My daughter is 19 and was diagnosed with Crohns about 6 years ago and is highly lactose intolerant. She is on a number of medications which she is trying to reduce for long-term health concerns. About 3 months ago she started having constant back pain (around kidney region), stomach tenderness and difficulty eating (food would make her hurt) -- she also had some rectal bleeding periodically. She had numerous blood and other diagnostic tests and the best they could determine is that one of her meds (Imuran) was at too high a dose and she was having a toxicity reaction. She went down on the med and seemed to do better until a couple of weeks ago when the same problems started again. She again had blood and other diagnostic tests this weekend and they couldn't find anything ... just said it was Crohns related. This has, and continues, to feel totally different than Crohns to her and we are both getting frustrated that no one can figure out what is going on. Any suggestions would be most appreciated!

[pebeles]

i havent been diganosed with crohns but i was getting these symptoms every once in a while but now it seems like everyday no matter what i eat or try it seems to be getting worse i have sever back pain around the kidney area and often have alot of bleeding vaginaly, i have been told that i have polycystic ovarian syndrom and that i had a kidney infection but the birth control for the cysts doesnt work and the antibiotic doesnt help the burning feeling when i pee or the back pain... i have had a scope down the throat but the biopsies have all come back negative for whatever they test for. i am supposed to have a rectal scope in about a month but i dont know if i can handle it. i just had pizza not even 10 minutes ago and am already in a lot of pain.... any suggestions

[my2kdzcrz]

Hi have Crohns colitis  and im sorry to tell you that the symptoms you are saying does sound like Crohns to me not that long ago i went and had two scopes done one down the throat and one up the butt, what they found is that the Crohns has now moved into my stomach thats why i"m having so much trouble eating they gave me tecta 40 mg and i also have to take until the sores heal around the stomach. If she hasnt had any scopoes done in a while see if they will do those.Hope you feel well soon.