Help me - I don't know whats happening to my body

[jasminevalerie]

Initially I was diagnosed with an eating disorder in August 2011, the symptoms weren't completely there at the time. I did try to loose weight and I got caught up in it all so the doctors always blamed my eating. My heart rate was down to 40 beats per minute and I felt like walking death every day. My stomach was always bloated, it felt like the food wasn't being digested and just sitting in my belly, my nutrition got worse and worse and I kept forcing myself to eat but I couldn't hack it anymore. Months went by and I couldn't walk, my hair was falling out and no one knew what it was... They wouldn't help me. They blamed it on me and said I needed to eat more. I got diagnosed with depression, anxiety and associated panic attacks. But the only reason why I was is because I was very weak, had no energy and it was hard living the usual teen life because I physically and mentally didn't have the energy to. I went to so many local GPs demanding tests and none of the bloods at the time were coming back with any answers. I was passing blood and mucus at both ends. I lost 1/3 of my body weight and got down to 53kg from 75-80kg. I finally went to a GP who did a stools test, 3 days in a row. Which showed a microscopic parasite called Blastocystitis Hominis. Most people have these and in very severe cases, generally those with weak immune systems... You can become infested. I was on a strong course of antibiotics which enabled me to go to the toilet easily.  I don't think this is the problem though.  I'm in so much paid since getting off the antibiotics.  I need answers and every one that i see isn't willing to help.  I feel 16 going on 40.  I'm so on edge, really over it.  I need help - is there anyone out there that i can chat to? I don't know whats going on and i'm scared :( I can't go to the toilet and the only thing i pass is mucus.  My anus is sore, my eyes are heavy, i can't concentrate.  Living this way is unrealistic.  I'm about ready to give up.  My white blood cells are going down now.  No one will do tests.  Please someone help me... :(

[painintheass481]

I feel so sorry for you .I am facing the same thing. pain in my rectum with bleeding and mucous.  Stool that changes color and shape .  Bloating and belching.  My Gastro Doctor did some blood work found a infection with a high WBC.  I just had a cat scan of the abdomen and pelvis awaiting result.  A endoscope and colonoscopy have been ordered.   I hope you find the answers I feel your pain.

[Crusty007]

Hi, sorry to hear your situation...a few questions:

-your weight tells us nothing if you don't also tell us your HEIGHT...

-you need to list exactly ALL the medications you have had, not just recently, but for basically many years back. This also includes, vitamins, over-the-counter drugs and herbal supplements.

-also, having a heart rate of 40 is serious. Did the ER really send you home with a heart rate of 40 ? Did they do a ECG?

-If anything, you need to be very precise in describing your symptoms. You need to describe the individual pain, the location, type (throbbing, stabbing, continuous, if there's a sudden onset when you change position or eat something)...symptoms like pallor, rash (location and type are important).

[jasminevalerie]

Hello, thanks for your response.  I'm feeling horrible, hot weather has hit and it's taking more out of me.  I finally got rushed through and they put me at the top of the waiting list due to how much pain I am in.  I am having an endoscopy and a colonoscopy within the next 4-8 weeks.  I wish it was sooner though, all of the aches and pains are kicking in.  I'm still extremely constipated.  I went to emergency and they found chronic inflammation in one of my organs - they still sent me home though.  They feel safe prolonging my pain because my bloods seem to be ok through all of this.  I don't think they understand what I am going through at all.  I will repeat my email address so hopefully you can make sense of it, I'll put dots and spell things out for you - kyleandjas at gmail dot .c.o.m.

[SHABELL]

They keep blocking our Emails. I think I got yours so I will try.
It looks like they xxxx the part out after gmail but how are you feeling?
Did you try some of the tips I gave you with eating. Smaller meals but more and drink plenty of water and decaf tea. Keep me posted and I will try this Email.
MJP

[jasminevalerie]

. c.o.m

[jasminevalerie]

I'm in Australia - Melbourne.  You can contact me on kyleandjas at gmail *******

[SHABELL]

Hey I definately feel you need to see a doctor right away. Go to an emergency room. They have to see you and as for the bills they will have to let you pay something each month. Set up a payment plan and just tell them this is all you have each month. They do that in the U.S.  But with that lump that does not sound good. Are you not eating because of the pain and weakness or do you have anorexia? Because now with the issues you have this is serious. You can not let your heart rate go to 40. Plus you have to find out what is wrong with your stomach and why you are passing all of the mucus. Are you going to the bathroom at all. If not try natural things to go. Prunes or Prune juice. At least you might feel better if you go. Also eat a lot of small meals throughout the day as it is easier on your stomach. Drink plenty of water and decaf tea. The main thing is to go see a doctor and they have to run tests, you are too weak and this is not good. Keep me posted. I would send my Email but I think they blocked it. I'll try again. Where do you live? ***@****
MJP

[jasminevalerie]

Hi,

Thank you so much for your response.  My mother helps me the best she can but she doesn't know what is causing this all and we don't know what could be harmful/will help.  Just when i didn't think this could get worse the last few days have been horrible.   I keep waking up in the middle of the night with excruciating pain, i am still constipated yet have sudden urges to run to the toilet only to pass mucus and blood.  I have now developed a large lump in and around my anus and every time it is touched my anus bleeds.  I am so very bloated and am finding it hard to force feed myself.  Thanks for the tips, i ate fish and veggies for dinner today - still not settling well but for nutritional sake i forced it down there.  I wish i could show you these pictures of what i'm passing but i don't even like seeing them myself.  I'm taking photos to show the doctors that it's not all in my head.  I'm in agony most days.  I all of a sudden get really tired and feel as if i'm going to pass out, yet i still can't get to sleep.  Do you have an email address? Can we talk another way? It's good to talk to someone who has been through similar things.  How are you going now?

[SHABELL]

See my post but I meant to say take Vitamin D3 not D2. Anyway read my post, hope it helps.

MJP

[SHABELL]

You said you are 16. Are your parents helping? What state are you in? You have to continually go and find a doctor that will actually help you. There is someone out there that will get to the bottom of this.  I know how it is to need to eat to live but your body won't allow you to eat or digest.
Try eating in small amounts first, meat, fish, eggs, veggies and fruit but in moderation because fruit is full of natural sugar. Get rid of the sugar, grains (no wheat at all) and legumes. Drink lots of water and decaf tea and I make homemade yogurt and it really helps my digestion. I am following the SCD Diet for IBD but this will help anyone with eating. If you need a predigested meal replacement that will help put on weight get ABSORB PLUS from Listen to My Gut. (It is actually not allowed if people are following the SCD Diet but in an emergency and you need to add the weight this will help. It has whey but all the lactose is pulled out of it and it is predigested so it won't bother your gut. If you are having alot of mucus that could mean Crohns or Colitis. This will help with those problems. Also go online to GI PROHEALTH and get there Acidophilus probiotics, start out with the 3 billion only. This will help. Take Vitamin D2 in Olive Oil in pill form (at Whole Foods). It takes awhile, took me 9 months to feel better but I did it day by day. Keep looking for a doctor. Try a Holistic Gastroenterologist. Keep me posted. Good Luck
MJP

[jasminevalerie]

I haven't had my period in a year...