CROHN'S DISEASE / ULCERATIVE COLITIS COMMUNITY
No diagnosis but tomorrow is a beginning

No diagnosis but tomorrow is a beginning

Well, for those who have tried to give me help under the out of options post tomorrow is the big day. I finally see my surgeon and get the surgery date. It has been a long 8 months of agonizing pain and so many symptoms. I have learned from this that it is you that has to be your own advocate. State medicaid, Dr's, specialist, and test after test I found out I had to do the research to find the test I need along with the great help of the people in this community. I had to write to the president of the united states twice, the senator three times, tv stations, newspapers, and my govenor twice before I got the help to get the test I needed to be approved. Thanks to Mark Sanford my govenor, (the only one to respond) I am now able to move forward with getting a diagnosis. To have a Dr. pat you on the leg and I quote " Go home say your final goodbyes and get things in order." and I quote again "Your heart is too damaged to under go any further testing." She didn't even have the courtesy to have a loved one there to hold my hand at what I was being told. " I'm sorry she says. We will not be able to give you a diagnosis." Three years ago I told my Dr my mother has crohn's. Here I am now after having every single symptom of crohn's am finally being tested for that. I did what that Dr told me to do. I say my goodbyes and got things in order. Late in the night because a death sentence laid upon me I would cry. What was I going to tell my children? Would they find out after my death that it could have been prevented? They throw medications here and there and they never work. I found a great herb thanks to someone on here called the moringa. It works wonders for me. We all have to make which choice we are going to go. Traditional medications or herbal or even both. The important thing is what works for you. I pray my surgery date is soon. At this point I call myself the walking dead. I cope by either running myself nonstop till bedtime or using a portable cd player with music to try to avoid how bad I really feel. I guess we all adapt and adjust. If this surgery shows nothing I do not believe I can go any further. Every other test has been exhausted. Any others out there with suggestions, procedures. or can relate with me Please feel free to respond? I've found great comfort here.
Tags: beginning
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