Crohn's Disease / Ulcerative Colitis Community
On humira, is it causing the burning?
About This Community:

This forum is an un-mediated, patient-to-patient forum for questions and support regarding Crohn’s Disease and Ulcerative Colitis issues such as: Abdominal Pain, Arthritis, Bleeding (Rectal), Blockage (Intestinal), Delayed Development (Children), Diagnosis, Diarrhea, Fissures, Gall Stones, Growth - Stunted (Children), Kidney Stones, Living With and Managing Crohn’s, Malnutrition, Medications – Drugs, Nutrition, Pregnancy, Protein Deficiency, Research, Skin Problems, Stress, Surgery, Symptoms, Tests, Treatments, Ulcerations – Sores, Weight Loss

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

On humira, is it causing the burning?

I have had crohnes disease since 13. I am now 28 and have also been diagnosed with ra and osteoporosis. I have ha many weird side effects from crohnes such as arrhythmia nodosun.

Currently I am extremely photosensitive. I feel like a vampire on movies getting Byrne every time I step into the sun. Mainly on arms face and neck. My neck gets a reoccurring burn mark that mimics those that would come from a curling iron. It always happens in the same spot, lower left neck superficial to my anterior scalene.

I am worried because I have been on humira for a couple years an have been worried about side effect. I was also on 6mp which I do know is a major risk. I told my doctor of the mess risks but he said I needed them. I took myself of 6mp because I do not want white tcell lymphoma cancer.

I have heard it could be shingles but my professors say it would be more uniformly spread through my upper arms.

Any advice? My wonderful doc never called me back?
1711789_tn?1361311607
Hi there!

Photosensitivity is often associated with autoimmune conditions and is largely an effect of the primary condition, than a side effect of the medication. You could make use of commercially available sunblocks for reduced sensitivity. It is not advisable to start of stop medications without medical advice. For each medication, the benefits of taking the medications are well evaluated against the risks/ side effects. I would suggest discussing the situation and the management plan in detail with your treating doctor.
Hope this is helpful.

Take care!
Blank
Ulcerative Colitis questions?
100,000+ doctor answers
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Crohn's Disease / Ulcerative Colitis Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Digestive Answerers
1340994_tn?1374197577
Blank
Caryopteris
Raleigh, NC
1974283_tn?1328326848
Blank
Megadodger
Edmonton
Avatar_m_tn
Blank
me_just34