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Please help with questions about my UC

More questions about my ulcerative colitis

I am really curious about what remission is considered to be for ulcerative colitis.  I am still going to the bathroom on some days up to 7 - 10 times a day and it's pretty painful.  Also, there is still a lot of blood but no diarrea.  I also still get a lot of pain which is not always fixed by dicyclomean.  Plus sometimes I run a low grade fever for a week at a time.  Whenever I talk to my doctor he says that I need to see my GP because it's not related to my condition and that I don't have any food restrictions at all.  I really need to go out and get a job but really nervous that I won't be able to make it to work everyday.  I was just diagnosed in May this year so I'm still trying to figure things out.  Also, I'm always tired and wiped out.  Do you ever get your energy back?
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483733 tn?1326798446
Remission has no blood and probably no more than 2 BM's a day.  You are not in remission.  I would really recommend you find another GI.  This needs to get under control.  My son is in remission right now due to first, getting things under control with Pentasa and Prednisone, and then as he is weaning off the prednision he started Imuran.  He has been 1.5 years in remission.  I really hate when doctors don't recognize the benefit of diet changes.  There are medical studies proving that a gluten free diet helps UC.  I would suggest you give that a try, perhaps even with the guidance of a Naturpathic doctor.  My son refused to change diet so went the drug way.

You must take care of your disease.  Too long of a period of active disease can greatly increase your risk of megacolon or perforation.  I had UC for 10 years and it was not managed well by my doctor.  I ended up perforating and having a colectomy with a J-Pouch built a year later.  It is your body, fight for the medical help you need.
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Avatar universal
I was diagnose with UC just over 2 years ago.  What you are discribing at symptoms of UC, and if your GI is not recognizing that, I would think about changing GIs to someone that will listen to your needs.  Are you on any medications for it? If you are not, that might be the reason you are not feeling well all the time and are tired.  

I would love to give you some hope, but even on my best days I never felt 100% like myself.  I think about 80% of my energy would come back on a good day.  I would then over do it, and creep back down.  I was never able to find a medication to work for me, so this may be a reason I never felt 100%.  Maybe with the right medication and GI dr, you can get your life back together and get a job.  

I am employed, but have called in so many times bc i couldnt get out of bed long enough to get dress for work.  Luckily, I work for a company and a management team that is very understanding, and though I call in a lot, it has not effect my position at work while I am there, and I have even been up for a poromotion.

I know it is hard to live with, but as long as you stay positive, and know all your options, and have a good support system, it gets easier.  

I hope that answers your questions and gives you some guidance.  I know when I was first diganosed, I wish someone was there to tell me what to expect, that has gone threw it because my family and friends just didnt understand.

Let me know if you need anything or have any other questions I can try and answer.
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