I watched my mom ask my doctors the same questions when I was younger. "Why can't more be done?" "What is this condition?" "Where do we go from here?" "Will she get better?".. My doctor, at the time, liked to reply with "we don't exactly know, not at this time, the condition is very different from person to person."
In the long run, taking medications you do not need is not a good thing. If he is given an immunosuppresant or a steroid it could cause more problems. There's steroids that help with the small intestine and steroids that do full body but are localized to colon and such.
In my experience, as awful as it is, the more time the doctor takes to figure out the problem and get an exact diagnsis the better chance you rson has of having a healthier life. I spent 10 years going through hell with diarrhea, vomiting, bloating, bloody stool, rapid weight loss, couldn't gain weight, bathroom 30-40 times a day, always fatigued. I went from being an honors student to not attending classes because I was always in the bathroom. Your son is going through a lot, but if I knew what I know now, I could have saved myself a lot more trouble and if I gave the doctor that time to search for the answers back then maybe I wouldn't be where I am now.
If you are unhappy with the time it is taking your doctor to get back to you or the answers he is telling you, tell him. If he cannot provide you with the knowledge and support for your son that you need, tell him you would like a referral to a new doctor. I went through 3 GI specialists before I found one that works for me.
(Keeping a side note that I am happy and healthy now. It took a long time and a serious surgery, after a ruptured colon, but I never thought I would ever be here.)
Im sorry about that , EE stands for EOSINOPHILIC ESOPHAGITIS. His symptoms are Diarrhea every time after he eats with bad stomach ache. Blisters in mouth, very under weight, loosing the enamel on teeth. Always has sinus issues every day 24-7. Bad head aches, can't sleep at night. No energy. He had complete blood work up and nothing came out of that. Just had the E.E. and acid reflux pretty bad, and a little gastritis . They did do biopsies in the colonoscopy and the endoscopy. Hope this helps.
Does your son have diabetes? What is his complete list of symptoms? What does E.E. mean? What did the reports say? What is the diagnosis so far? Does he have deficiencies in vitamins and minerals? Does he have constipation or more diarrhea? Did they do cultures for infection with endoscopy?
There isn't enough information here considering all the testing he has already had.