Will the diarrhea ever STOP?

[tonya3]

If I could just my daughters bleeding under control!  She is 13 and has been diagnosed with Crohns/ulcerative colitis.  BUT...she cant take any of the medications, like pentasa, asacol, 6mp because she gets pancreatitis and becomes even more sick.  So I have worked in a hospital pharmacy for 15 years and I put her on fish oil, probiotics, calcium and her symtoms were half relieved.  She still has some bleeding and lots of diarrhea,  but she has not been hospitalized for 3 months.  
So my question is were to now.  She is under weight, her hair is falling out.  No one has any answers.  She had lots of fat in her bowel movements but it has stopped alot since i put her on digestive enzymes.  I just dont know where to turn to now?   Anyone have any suggestions?

[elroque]

I had diarrhea for about 4 months with a lot of bleeding and on three occassions hemorraghing. What helped relieve it a bit was taking Imodium (immodium) with a cinnamon or chamomile tea that helped calm my stomach and seemed to curb the diarrhea a bit. But it took a lot of steroids pumped into my system to finally get the Imuran I have been on to work. The diarrhea eventually stopped and all the weight I lost I put back on (plus a nice extra 30 thanks to the on-going steroids). I hope your daughter does get better. She will be in my prayers. Good luck.

Rox

[tonya3]

Hi thanks for your comment back.  She has pancreatitis with every med she has tried.....so what next?

[Catherine2oo8]

Hii, im 19 and was diagnosed with crohns when i was 13, i had diarrheoa for aleast a year, i found the only thing that stopped it was when i was on a high dose of steroids.

[Michelle19]

This may seem silly, but I've found that what helps my diarrhea is to eat things that would normally constipate people...for example, if she can tolerate lactose, my doctor said soft  cheeses like goat cheese, or low fat cottage cheese can be helpful.  As long as she doesn't have a dairy problem, eating things like cheese, taking pain medicines and anti diarrhea medicines may help, hopefully.  What stopped the bleeding for me was Remicade, nothing else worked.  Even though my diarrhea continued, it was no longer bloody or painful.  Good luck!

[luckycharms692]

Hi! I'm 14 and I was just diagnosed with ulcerative colitis. My symptoms aren't as bad as your daughters and I was able to control mine with steroids, but I can't stay on steroids forever and want to cure myself with natural remedies. Look up David Klein's book for self healing ulcerative colitis. I just ordered it and am hopeful, because so many people have cured themselves this way. I would also look into food combining for easier digestion. Hope this helps!

[AprilReign]

I'm so sorry for your daughter's struggles and pain. I have CD and was diagnosed 6 years ago. It would be of value to know if she has CD or UC, because with Crohn's, you can develop obstructions and fistulas and these can penetrate down through all layers of the intestines. UC doesn't behave this way. The reccomendation to put her on anti-diarrheal meds is a good idea. Normal people are not supposed to take it w/ any regularity, but if she has CD, that advice goes out the window, you can only help her by using it. I buy the generic. Ultimately the best relief i have received is with Remicade, although i developed a MRSA and am scared to death of getting that sick again. I seem to always have infections. Let us know if you can get her on Remicade - there are patient programs for those who have no insurance. My last reccomendation is a good one, to try Questran, ask the dr about this, i think the generic is cholestyramine. It is grainy tasting, even mixed with juice, but taking it is worth the symptom reductions, it binds with the bile salts and helps normalize diarrhea and "water dumping"   making sure she gets enough water when she is getting severe diarrhea, is very important. It's a struggle for me. hope some of those might be worth trying for you, your daughter. God Bless.

[ks78]

My husband has UC and I was thinking about buying this book David Klein's book for self healing ulcerative colitis.

Did u try that book? Is the diet mentioned in the book really working?

Any advice is appreciated and would help me a lot.

Thanks in advance.

[coughting]

Tonya and all.

They keep getting new meds for UC and CD.  There is a new one out that is not suppose to have the side effects that Remicade and Humera sometimes has.  As your GI doctor to try this.  Apparently it comes in a shot form like Humera.

Best of luck and wishes for better health.

[BrandiLynn909]

have u tried humara? it works well i have been taking it for some time now. you might want to talk to the doctors about it.

[Zaklin]

Hello, our daughter is 12 and was diagnosed at 11 with Crohn's and we still haven't found the drug that works - she has the opposite when it comes to bowel issues -she's constipated so she has to take "peg powder 3350" which helps to maintain the liquid around the bowels so a person can "go"....she's tried pentasa (made her sick also but also gave her a bought of psychosis...gotta watch the drugs for that too...) and even Imuran didn't work for her...

now they want her to try Remicade (which is an IV infusion but you only go 1 x every 8 weeks for approx. 2 hrs) or Humira (needle injections every 4 weeks) or Cimzia (which is under clincial trials for pediatrics in Ontario Canada) the idea is that a Crohn's Patient - can't digest food like "normal people" loss of appetite or pain when eating - In people with Crohn's disease the idea is...the immune system produces too much of a protein called TNF-alpha (tumor necrosis factor-alpha). TNF-alpha triggers inflammation, which can lead to painful, inconvenient symptoms and damage to your gastrointestinal (GI) tract.