Hi there-
New to this forum but have been a Crohn's Disease patient for 8 years. Your symptoms are very similar to mine and I was finally diagnosed with severe (stage 4) endometriosis in 2008 and underwent 3 surgeries before finding relief. I have Crohn's flares occasionally which I treat with a short dose of prednisone and diet restrictions. My endo is what causes the majority of my pelvic and abdominal pain. I would suggest getting referred to a gyno who specializes in endometriosis to do a laproscopy to see if you have it. I had numerous cts, ultrasounds, xrays, and mri's which did not show the vast amount of endo I had on my bladder, colon, uterus, and ovaries. I would definitely seek this info out. Your symptoms are congruent with endometriosis. It is not a very well understood disease at large and difficult to diagnose. It took 15 years for me to find a doctor who diagnosed me properly.
Has this ever been suggested to you?
Lu
I'm still having abdominal & pelvic pain......I'd pelvic & transvaginal sonogram cause my gynochologist felt that I may have fibroids n my reproductive organs but it ruled them out. Drs r still trying 2 find the cause y I'm having this chronic abdominal/pelvic pain. I'd scans w/ & w/o contrast n my rectum-(mri, pet, ct & etc)
Hi!
I am sorry to hear about your medical problems. Pain in the lower abdomen, pelvis, and vagina can be due to infection (STD, non-STD like bacterial vaginosis, yeast), pelvic inflammatory disease, urinary tract infection (UTI), uterine fibroids, urinary bladder infection or cystitis. If you do not have any discharge and there is no other symptom then it can also be due to pinched nerve (either pudendal or spinal). These conditions are broadly classified as chronic pelvic pain syndrome. The intensity of pain depends on the degree of inflammation and thus compression. This can vary. IBS, Crohn's, ulcerative colitis, celiac disease, and foods causing gas (raddish, cabbage, warm milk etc) can be the other possibilities. For a confirmed diagnosis you may need tests (any one or a combination of these) like urine examination, vaginal swab test, PAP, abdominal and pelvic ultrasound, nerve conduction studies, stool tests, and other GI studies like barium meal or colonoscopy or sigmoidoscopy.
Some of these tests you have had, but since the pain is persisting, other conditions too need to be looked into. Please consult your doctor regarding this. Take care!
The medical advice given should not be considered a substitute for medical care provided by a doctor who can examine you. The advice may not be completely correct for you as the doctor cannot examine you and does not know your complete medical history. Hence this reply to your post should only be considered as a guiding line and you must consult your doctor at the earliest for your medical problem.