All the information I have, I've learned here. Check for the post title "A Bit Personal". They told me about the seton.
Mostly, I wanted to let you know you are not alone. And I do wish you the best of luck. I see my GI tomorrow to see what my next step for my fistule is. I haven't had any surgeries yet. I have only been on antibiotic for what seems like forever and have had my Remicade dose doubled in the hopes that it would close up on it's own. No luck for me so far.