This forum is an un-mediated, patient-to-patient forum for questions and support regarding
Crohn’s Disease and
Ulcerative Colitis issues such as: Abdominal Pain, Arthritis, Bleeding (Rectal), Blockage (Intestinal), Delayed Development (Children), Diagnosis, Diarrhea, Fissures, Gall Stones, Growth - Stunted (Children),
Kidney Stones, Living With and Managing Crohn’s, Malnutrition, Medications – Drugs, Nutrition, Pregnancy, Protein Deficiency, Research, Skin Problems, Stress, Surgery, Symptoms, Tests, Treatments, Ulcerations – Sores, Weight Loss
I do have to tell you though that it took longer for me to recover than I expected. I had an appendectomy three years ago and bounced back quicker than this surgery. But then again, this surgery was much more involved. It's major surgery.
I was in the hospital for a week after the surgery. They had me on a liqued diet the first three days and then we switched to a bland diet, adding more solids. I did have a lot of pain and tenderness but it was controlled pretty well with morphine. In some ways I felt a little worse after I got home. I think that was partly because when you're home you feel like you should be doing stuff so you're moving around more, etc. Try and rest when you get home. I know, easier said than done! However, you don't want to end up back in the hospital, so take it seriously what they tell you. My surgeon told me to expect a 6 to 8 week recovery at home and not to lift more than 15 pounds the first 2 weeks and no more than 25 pounds after that.
I was a bit surprised with how much pain I had. It lasted longer than I expected or wanted. Of course I wasn't a very good patient! I kept trying to push myself by doing laundry, etc. and then I'd really be feeling pain the rest of the day or the next day. I learned to take it easy and let others help out as much as possible. It really did take the full two months for me to feel normal again. It's perfectly normal to feel pain in the incision area as well as inside. Don't forget, they cut the colon inside you and it will take awhile for that to heal too. I heard it takes longer for the inside to heal than the outside. So even if your incision is healing nicely, it will take quite some time for your insides to heal. I had to physically make myself slow down. I realized how much I had a habit of walking quickly or sitting down quickly. You learn real fast to slooooow down or you will be hurting!
The tightness around the incision is normal too. It means you are healing and the skin is pulling together.
The diarrhea may last a long time. You may even have it for the rest of your life. I'm not trying to depress you, but whenever the do a resection you have that risk of diarrhea from now on. I had the diarrhea for a couple of months but my bowels are pretty much back to normal now. So I would expect you will be the same. I had about the same amount of colon cut out.
Again, I have to stress, give yourself time to heal. Let others help you out as much as possible. I was very fortunate. Our church brought over meals the first few weeks and my husband and kids pretty much took over the housework. My husband took the week off that I was in the hospital and the next week that I got home. Once he went back to work, my parents came over to help out with stuff. It was pretty humbling to have my mom do dishes and laundry but I was grateful for the help.
Please don't push it. Like I said, you could wind up back in the hospital if you do. Give yourself that time to heal. It's been three months for me since my surgery and I'm feeling great now! My incision still is red and a little bumpy. That can take up to a year to fully heal, turn white and smooth out, I guess. But please take it easy. I know someone who had the same type surgery and she did push herself too soon and wound up back in the hospital. Take it seriously! Rest, rest, rest. Within a few months you will be feeling back to normal again. I hope any of this helps or eases your mind at all! Feel free to write back or send me a PM if you want or have more questions. Happy recovery! :)
I have some minor pain at the incision sites (one long bikini one, and three small ones around the tummy), but they used superglue instead of stitches, and it's already looking/feeling mostly healed (much faster than my stapled c-section scar a few years ago). Increased vitamin C (I take two packets of emergen-C daily) seems to have helped the healing.
I have had a lot of internal pain, beginning after they let me out of the hospital on day four. It hurt when I breathed in deeply, but when I returned to doing the long slow breaths they show you at the hospital, I found I was able to breathe better again, and the pain has mostly gone away now.
My biggest surprise was the first time I got up to walk (about 14 hours after surgery). I got really dizzy and sick to my stomach, and I had severe pain in my right shoulder, so bad I could hardly function. It lasted for a couple days, at varying degrees. They said it is because air gets into the body during laproscopic surgery, and that it would go away as the body reabsorbed the air over time. But, my goodness, it HURT. I wasn't prepared for that!
They assured me that walking would get easier, and it did. The second time I was able to walk a little further without the dizziness and pain. After that, I was up and doing laps around the hospital wing and hardly in my bed at all except to rest/sleep. They say it makes recovery go faster, and it really seems to. Since I've been home, I've been up and around as much as possible. If I push myself, I feel really tired and sometimes the pain increases a little. Then I just sleep for ages. I've enjoyed my late morning sleep-ins and my afternoon naps, to tell the truth. I feel guilty about being lazy, but as my husband reminds me, it's not lazy because my job is to get better and to get better I have to rest so my body will heal. He repeats it like a mantra to me anytime he feels I'm pushing it too much.
My doctor wrote me out of work for four weeks but said I should really be able to return in two to three. I didn't believe him, but now I think he was right. I feel really guilty because I think I COULD return to work right now, but I want to use the time off and get some rest/get caught up.
Yesterday, we took my son to a pro baseball game and I was able to enjoy the whole day (it's was one and a half weeks post-op). Going up the stairs was pretty painful, though, so I had to take them really slowly with some support from my husband.
Anyway, my point is, yes there is a lot of pain and recovery work with the surgery, but it is not nearly as bad as I'd imagined, and healing is really pretty fast. Hope this helps some of you who are considering the surgery or about to have it. :)
diet: they had me on clear liquids two days, and then suddenly gave me a dinner of pork loin, a potato, and spinach! I refused to eat it, because it didn't seem right so soon after my surgery. Turns out the food service had made a mistake and I was supposed to have softer food, but I did start eating solid foods the third day (even a veggie lasagna with carrots and spinach in it; I felt so naughty and was apprehensive eating it, because I couldn't have tolerated it before the surgery, but it went through fine). I was amazed how soon they had me eating, and- like you- I didn't trust it. I think I'd become so used to being careful with my diet that I couldn't believe I can eat some of those things again. I'm still having trouble with the idea of eating all that stuff again; I mean, how can a stapled-back-together-again-only-a-week-ago bowel be able to pass solid food and roughage so quickly? It doesn't make sense to me, but it seems it is possible. After I got out of the hospital, I took a few days of bowel rest on my own, and just drank Ensure and liquids with a little toast. It made me feel better and seemed more appropriate to help the healing. I had less pain inside when I did that, too. I'm eating more now, but still smaller portions because I don't feel very hungry (which is incredible, because I'm usually always hungry; I'm one of those people who didn't lose weight with Crohn's, much to my dismay; I actually gained weight except during blockages).
stools: I haven't had loose ones. Mine have been really really hard and sometimes very painful, and I've been constipated. However, I never had much diarrhea with my Crohn's, just constipation. Maybe how ever your disease manifests is how it will manifest post-op?
i had a bowel ressection last year due to an accident in surgery which left me with scepticemia and absesses i was very sick. it has almost been a year now and i feel like my life has totally changed i am a 22 year old young girl and i have to plan my life around a toilet! they kept telling me that it would get better but it has not changed at all.
i was wondereing if anyone could help me as i have a friend who has crohns and i have all the symptoms that he has i am permantley in pain with my stomach and feeling sick and constanly needing the loo all the time and i can't eat this and that and am so weak all the time.
i have just gone back to work full time and can't believe how tired i am!
can anyone help?
Your symptoms could be as a result of a number of different diseases and really needs evaluating and testing by a gastroenterologist. Unfortunately you are in the right age group for Crohn's and Ulcerative Colitis....I was 24 yrs old when diagnosed, but some 40 yrs later, still here and enjoying life. The diarrhea is under control, as is the lower abdominal pain, although I am currently having problems with eating, so on an elemental diet (Fortijuice) for the time being.
You should not have to suffer as you are doing...once you have a proper diagnosis and appropriate medications, you will get your life back to the "new normal". Unfortunately IBD is not curable, but treatable and something we do learn to live with.
Take care....and see a gastro!
Liz.
Well, I have a partial bowel obstruction in the small bowels. The surgical team was on consult, but eventually they decided not to do surgery and released me after 4 days of IV, steroids, and antiboitics. Now, I am on pred, and I am rapidly tapering down. I am feeling lot better. But surgery is in the banks for me sometime in the future and I am not looking forward to it.
Those of you had surgery (bowel resection) can you tell me what your post-operative experience has been. Particularly how long you have been on remission. If I get good 5-7 years I will be thrilled with it. Look forward to your response and support.
Thanks
thanks very much for your comments it really has been helpful!
i have never seen a gastro before and it is certainly someone who i think i need to see. i went to the doctors the other week and asked if they could test me for chrons so am awating some blood tests etc.
i will ask when i attend the surgery about seeing a gastro doctor.
many thanks again
maria
x
I was older when I got chrons unlike most of you. If you are having lots of flare ups I would ask my Dr. about Remicade. It is given by IV and you would have to take it the rest of your life probably. but it definately made me feel better.
I do have diarrhea and guess that is part of chrons. Sometime my bm is normal and sometimes I have diarrhea.
Please if you are having surgery, don't just go to the surgeon that your dr recommends. Check the bariatric surgeons out and get the best you can find.
Hope all of you have a great year.
coughing
One thing to consider is that (if you don't have a laproscopic - i didn't have it so i'm not sure) all your stomach muscles are sliced open and stitched back together. Your ability to move is seriously affected - that includes sitting up and walking around. You really have to let other people do things for you and not to offer help to people (lifting, carrying, moving etc.).
Also as a crohn's sufferer i have been used to diarrhea; therefore drinking lots of water is essential. However the bowel (to this day) hasn't recovered fully enough to absorb water properly at this stage. I've had the most intense headrushes since then - one of which led to me fainting. I have to make sure I constantly have lots of water with me.
Don't attempt any rich/strong flavours too soon after surgery, after my first op they fed me 'cream of chicken soup' which I was tasting for days after.
When i started moving around a bit more at home (about 10 days post op) i started cooking a lot (i've been trained as a chef) - i cooked for my family 5 days a week. I think this was really helpful; it was a good amount of exercise without being too strenuous. Also what helps is that you'll be eating what you want to eat - I had a very particular palate immediately post op.
can't think of anyhting else to say but hopefully this will help someone who's about to have bowel surgery
The worst pain was about a week 1/2 after surgery when I had my first bowel movement. Thought I was going to die. However, it was fine after that.
I still have loose bowels and the dr says that is because it was the small intestine. I have found that if I eat lots of breakfast on the go and granola then I have more firm bowel movements.
Still go 3-5 times a day most times.