My brother and I were both diagnosed with CF. I was told I had a milder case.
He passed away at age 44. I am 51 now and still not as bad as he was.
I never heard anything about mutations, till I read this forum.
The doctor in my small town still thinks CF is only for small Children and looked at me funny when I told him I had been diagnosed with it years ago. He did however recognize the names of the pulmonary doctors from the hospital that I was diagnosed in. He evidently thinks every case of CF is pretty much alike, and I must not fit his mold.
Why didn't they tell us anything about the different mutations when we were diagnosed with the sweat tests?
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