Deep Vein Thrombosis Community
Misdiagnosis?
About This Community:

Deep Vein Thrombosis (DVT), is a blood clot that forms in a vein deep in the body most of which are in your lower leg or thigh. Discuss topics including symptoms, treatments and prevention methods.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Misdiagnosis?

Hi Guys,

  I will tell you my story but im looking for personal opinions and advice on what to do.

It started after a long drive i woke up in the middle of the night with this pain in my leg that was really bad. I couldnt really walk on the leg and i deffantly couldnt get back to sleep. The pain eventually subsided and i managed to get a couple hours sleep. Upon waking up the leg pain was replaced with what felt like a stiff muscle that you normally get after working out and it was swollen.

I went to the the doctors who suspected a blood clot and as it was a weekend gave me an injection in the stomach and arranged a scan on monday as well as blood test. As my pain was only in my calf at that time the ultrasound was only performed on the calf and the main place of pain was not done. I just figured the lady knew what she was doing and i was told  i had no DVT. My blood test also came back fine. I went away happy.

A Week later i was still getting pain in my calf but the swelling had gone down but i started to get pain on the inside of my thigh and my groin. I went back to the doctors who again said DVT and i had another injection in the stomach and a scan and blood test.

The lady who did my scan this time wasnt very nice and seemed to think as i already had a scan i didnt need another one this scan was of the whole leg but was rushed and didnt seem to be done right. Blood test came back fine.

I left it for a couple of weeks but i was still getting pain in my leg and my chest was very tight and sore. I went back to the doctors and they said it can be a DVT as i had two scans and two blood tests which were normal. I ended up paying for a private scan and blood test which both came back fine. This scan was done brilliantly and i was happy.

Fastfoward 4 weeks and my chest is still really tight im getting dull aches in my back, Shortness of breath when doing very little( which is unlike me) My heart skips beats i occaisionly get sharp stabbing pains when i breathe and my lungs feel raw when i breathe. Iv been back to my doctors several occasions I have had a clear xray, a course of antibiotics and a course of steroids as well as an ECG. My lung function test was normal and so was my oxegyn levels.

Thing is my leg is still sore and now with this im scared its a PE and my DVT has been missed.

My Doctor wont sent me for a CT scan for PE as all my tests have come back fine. Iv even offered to go private but because of the radiation and risk of allergic reaction to the contrast she wont.

Is it possible the ultrasounds could of missed the DVT? Could the clot of broke away and moved to my lung  before i had the third scan so it appeared negative?

If i had an MRI with contrast instead of a CT scan would this pick up a PE?

This has all been going on for nearly 2 months. If i had another ultrasound on my leg would the time that has passed since it began make it more difficult to find?

Finally during the first week of this happening i was in the hospital for some routine checks and i had an IV put in. Since then iv got a lump where the IV went in. I have spoken to my doctor about this and she has advised this is probally a superficial blood clot and nothing to be worried about. I did ask her why my blood tests came back normal if i did have a clot and she said this one would be to small for the blood test to pick up. But i have read these can sometimes break off into a deep vien? Could this of happend and turned into a PE?

Sorry its really long but im kind of lost on what i should do. I dont know if i should just leave it and see how it goes or if i need to go back to my doctors. I think she is getting a bit annoyed with me and im not sure if she will do anything else.

Thanks very much for taking the time to read this
Related Discussions
3 Comments Post a Comment
Blank
Avatar_f_tn
I could not read ur whole story as it was making my blood boil. a dvt is above the knee I would sue the hospital who did the scan.
My story is in 2006 I fell and broken my knee cap I had surgery on it 3 week later I went back in for a check up and told the doctor that my leg was in so much pain my foot was 3 time the size it should be and I could not put shoes on it also my foot was stone cold. He told me it was all in my head that was a Thursday and on the Monday I clapsed and was rushed into hospital with a pe that went into my lungs and heart. 5 years I have a court case agains the hospital most of the don't know what they are doing. I hope u got it sorted and ur on med now dut I would sue as dvt is very very serious and it is misdiagnosed so many times and people have died. As for my doctor I found out he had misdiagno other people and some had died as a result of this I was one of the Lucky ones.
Blank
Avatar_m_tn
Hi this VERY serious!!! I lost my father 2 weeks ago.  he was just 66 years old. Feel free to call me or email me anytime.  773-879-7483
***@****
Blank
Avatar_f_tn
I am very sorry for your loss. It is very sad when you lose someone so young. Have you found out what caused the dvt ?
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Deep Vein Thrombosis Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
9 hrs ago by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank