Degenerative Diseases Community
Adult-Onset Ataxia Telangiectasia
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Adult-Onset Ataxia Telangiectasia

I am currently waiting on a definite diagnosis for A-T.  I was told 3 months ago by a rheumatologist that I possibly have A-T and was reffered to a university hospital.  I still don't have an appointment from this hospital and I am becoming frustrated.  I have been experiencing seizures and other neurological problems and I want to know for sure what is wrong with me.  Where can I find a list of places or doctors who specialist in this disorder?  Help!

Gustavia
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TheMadMan
Long Beach, CA