DEGENERATIVE DISEASES COMMUNITY
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Question

Hi, my name is Jordan. I am a junior and currently working on a project for the genetic disorder Familial dysautonomia (Riley Day Syndrome). I was wondering what it is like to live with this disease. Some of the symptoms are loss of pain, but what is it like to have this symptom, and what do you have to do in your daily life to cope with the disease?

Thanks, Jordan
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