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Anyone knowledgable on the disease/condition where you don't lose your baby teeth?

I met someone who has this disease/condition where he never lost his baby teeth.  It's obviously hereditary, his sister has the same thing.  It's obviously noticable, their teeth are kind of spaced apart, you can kind of tell they're baby teeth, and honestly I feel bad bringing it up to either of them or asking.  I am just curious if it's something that is fixable, how common it is, etc.  Just looking for some info, thanks.
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Avatar universal
I too have the skin condition 'Congenital Ectodermal Dysplasia'. I still have baby teeth, my teeth are a bit spaced out regardless of braces etc. I have big gaps on the bottom where i've never had teeth and after countless bridges am fortunate that I may get implants.
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My son is 12 and has lost only his top 4 teeth. Those are the only adult teeth he has. He has a birthdefect called Ectodermal Dysplasia, there is a foundation you can look up called the National Foundation for ectodermal dysplasia. you can obtain alot of info there.
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Avatar universal
That's weird!  I didn't know that there was a "name" for it or that it was a "disease".  Does that mean ALL of your baby teeth, or just some?  I'm asking because I only ever lost my 2 front teeth (top & bottom) - never any others - and I lost them all when I was 7 yrs old.  While I'm thinking about it, I guess you could say that I've had 5 wisdom teeth, too.  I had all 4 of them pulled when I was in my 20's but when I was in my 30's (about 10 yrs ago), I apparently had another wisdom tooth grow in on the bottom!  The dentist didn't mention any kind of "disease" or anything and he thought it was pretty interesting...considering he was the one who pulled out the first 4 and even went back and looked at all my old x-rays to make sure he didn't miss anything!
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Avatar universal
Thanks, Scott.  I would have done the search initially, but I didn't know what it was called or what to search.  Thanks again.
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Avatar universal
COMMUNITY LEADER
Prolonged retention of primary teeth is commonly associated with congenital missing of permanent teeth, of which can be classified as complete or partial anodontia.Anodontia may be associated with ectodermal dysplasia.,which is a hereditary condition.Detailed information can be obtained through google search.
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