Please help. Running out of hope.

Help I’ve been to every dentist and specialists with no relief. Some information from reports are:

Had pain on the upper left gum went to all kinds of dentist  
and neurologist s who sent me for many MRI’s nothing showed up. Neurologist put me on lyrica  it did not help. About a month later a large bump appeared on my gum went back to oral surgeon he went in and removed the cyst sent it to lab.

Infected intrabony tissue. Looks like a cyst. 1/13/2006

Microscopic Description

Microscopically, this specimen consists of a raised nodule of maturing fibrous connective tissue. It is surfaced by stratified squamous epithelium. The fibrous tissue contains a number of small neurovascular bundles. There is a mild chronic inflammatory infiltrate present. No evidence of malignancy.


Was ok for two months then pain came back I then went to mayo clinic they put me on neurontin 300mg. Did not work

Mayo also told me to go to University of Florida College of Dentistry so I went. The findings non suppurative  osteomyelltis in maxillary alveolus #12-15 region.
Referral to Dr Glenn N Taylor in Gainesville Fl. He did surgery an en bloc resection was removed up into the sinus floor, sent for specimen evaluation. The hemiation  area where there was a perforation in the cortex was repaired by pushing the sinus superiorly and taking it completely out of the hole which was incorporated into the en bloc region. However just before closure was done the infraalveolar  nerve on the left side was stretched and marcaine was injected into the infraorbital foramen.

Microscopic Exam
Multiple sections of a decalcified specimen consisting of bone and associated soft tissue. The bone on one side of the specimen is somewhat densely arranged with more cancellous trabeculations on the interior. The bone displays cell-filled lacunae prominent resting and reversal lines plus well-developed haversian canals. Fibrofatty marrow is present that in focal areas contains aggregates of mild chronic inflammation.

Felt ok two weeks after I told Dr. Taylor ,I always fell fine for about two weeks after any procedure. Then after two weeks the pain starts to come back. The gum area after the surgery began to sag so I called Dr Taylor he said it was normal. Six month check up still soft tissue Dr Taylor called it and he said it would firm up a year later still the same I couldn’t wear my parcel it pushed the tissue up and it hurt. Dr Taylor said it would firm up don’t worry.

Never did  firm up so I had a skin graft by a local dentist to pull up the loose tissue. I just couldn’t afford the four hour trips to Gainesville.

Pain is still with me I went back to dentist to see if more grafts had to be done he said no. Said everything was healing fine. Yet still it hurts the pain is more on some day and less on others. Today the last tooth on my upper left which is the eye tooth feels like it is swollen and it is pulling the gum away the tooth itself. When I rub my tongue against itit makes my upper left lip numb.

Also had 3 to 4 nerve blocks first one helped for about a week to about week and a half.
Then went to a Dr. slavin he is an oral surgeon  he said I have a typical facial pain. Went back to my neurologist in town he then put me on neurontin, started with 300mg now on 600mg three times a day pain is still with me.

If you might know what I have I could  get it fixed and just relax and enjoy my life, With this pain it’s a fight to get through each day.

A few things I forgot to mention when I eat  and drink the pain goes away, yet sometimes when I am having a meeting and I have to talk for a long period of time it begins to hurt.
When I press lightly on the jaw bone next to nose pain seems to hurt less. At times when I find myself stressed it hurts and then  again at a stressed time nothing,. Also when I’m deep in work it’s not there. I mediate sometimes it helps and sometimes it doesn’t .I keep hoping someone will find the problem and fix it.


Thanks For Your Time
Jonette waiting on some hope

[scottma]

I suppose the histopathologic diagnosis is non-specific chronic imflammation or non-specific chronic osteomyelitis. The pain location appears to be upper left alveolar ridge. Assuming the pain quality is dull aching,.Behavior of pain is persistent with fluctuating intensity. Complete pain remission appears to be present after surgical treatment and recurred after a period of time. There is no accompanied autonomous phenomenon. The pain quality is not pricking, burning, or pulsating. If all above information is correct, I would tend to rule out centrally mediated pain, consistent with atypical odontalgia. Pharmacologic treatment is generally the treatment of choice. Neurontin is  generally effective, however, the dosage may need to be titrated until therapeutic effect is achieved, amitryptyline may be effective ,too. Sometimes, atypical odontalgia is difficult to manage. Seeing an orofacial pain specialist is advised.