Blistering bumps on scalp, face, back, etc.

I am hoping to find help for a worsening skin condition that is making me barely able to function.  One month ago I had a biopsy and was diagnosed with dermatitis herpetiformis/gluten reaction.  Having been taking Dapsone 100 mg for a month and using a steroid cream on my body blisters.  I either put tea tree oil or hydrocortisone 1 mg on my face.  Nothing really helps.  I have been gluten free for a month.  Every day it gets worse!  My scalp is covered, my face is covered, ears inside and out, shoulders, back, knees are bad, arms, neck.  I've literally felt these waxy blisters underneath or on top of my skin on my entire body within the last day.  They sting, burn, sometimes itch.  I'm scared to eat anything as I've read dairy and salt can aggravate the condition.  The sun also makes it worse.  I am literally hiding in my house which is no way to live, especially as a single mother of two active boys.  I bet I have 200+ bumps/blisters on my entire body, maybe more.  Any suggestions are welcome as I cannot continue living this way.  Thank you!

[maatson]

Generally the response to dapsone to DH is nothing short of spectacular with symptomatic relief with in a day or so. Also UVR Rays in the sun do help in many.
Why dont you get reviwed once again by your physicians. May be you may need a change of medication. ok?

[ferntree]

I have an appointment Tuesday morning with my derm doctor.  I have many questions and hoping for a change of medication or other treatment.  Thank you for responding!