Diagnosed w/ Pompholyx and CRPS

A year ago after I had a hysterectomy, leaving one poor non working ovary. I had severe internal bleeding that required several blood transfusions, and also developed agressive double pneumonia. I was released 11 days later. A month latera follow up MRI showed a nodule on my thyroid. A needle biopsy proved it benign, however, the day after the biopsy, I had an odd rash on either side of my throid, that were identical. The next morning there it was on my chest. The next on the back side of my arm just above my elbows, and then eventually 3 little spots in triangular formation on  my palms. This was all very similar to when I had shingles, except that shingles stayed on one side of my body, this was on both. The blisters began to spread and were soon covering both palms. They itched intensely, and I also had nail pitting. 2 months later it was on the sides of my feet. Look in my album for a photo of my foot.

It is now one year later, and I have been to countless specialists, including dermatologists, allergists, and immunologists. I am not allergic to anything, nor have I ever had eczema or any skin problems (less the shingles). About 6 months ago I began having severe swelling in my hands, and the pain in my feet is similar to 'walking on glass'. I am at the point now where ALL my bones ache incessantly, I suffer from insomnia and extreme fatigue. I have had night sweats my whole life, as well as always feeling bitterly cold throughout the day, no matter how well I bundled up. My extremeties are almost always like ice.

Here's the kicker. I've been tested for everything under the sun, from cancer to fibromyalgia to lupus to RA to MS. All my bloodwork comes back normal. I've tried soaks, cortisone creams, oral and topical steroids (which only make it worse). I am on neurontin now for supposed CPRS, that seems to help with itching, tho' I do not know why. I am tired of dermatologists, as they only want to treat the symptoms, and nothing they have prescribed has helped in the slightest. I feel like this is my immune or nervous system screaming for help, that the blisters are some kind of red flag, but I can't seem to get a real diagnosis as to WHAT is causing this and why. My PCP is stumped, and referred me to a pain specialist, as my pain is daily chronic and at times debilitating. The pain doc said he thinks I have CRPS from the surgery, which only a few of my symptoms relate.

I am so scared they are all missing the bigger picture, that I may have a serious problem.I am writing this in the hopes someone will see this, and be able to offer *some* insight.

[carybear]

I cant help but feel the lassitude in your post
I am staring down the very same road, and I just know it's either going to be A) Worst case senario or B) Nothing that western medicine can identify.
I have to ask you, do you suffer from Anxiety disorder?