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Folliculitis decalvans on scalp

Folliculitis decalvans on scalp

Has anyone out there had success or know of the success rate with using this Terrasil product. I've suffered from chronic folliculits decalvans now for 15 or more years. Its spreading and ive had no cure. Ive had several consultations with various dermos all diagnosing Bacterial folliculitis decalvans on the scalp. Staph is present. Its on the crown of my scalp. Has several scarred areas now and tufts of hair. Persistent postules that develop and puss, this is a very embarrasing situation. Ive had numerous courses of antibiotics all of which have some effect initially, then a resistence that has no effect. The antibiotics i've used have all been mentioned on various other web sites.  I've suffered a severe case of psuedo membranous colitis that took a good 12 months to cure as a result of so many cocktails of antibiotics. Have had several treatments of YAG laser therapy. Had steroid treatments too. I'm very desperate for a better way to manage this. Any advice would be grateful.
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Have you tried the following ?  Did this give you colitis ?

In 1999, we reported results of our study on 18 patients with folliculitis
decalvans,2 and have gone on to look at 20 additional
patients. Like Douwes et al.1 we could find no underlying
immunological or structural abnormality in these patients to
explain why they have such a major reaction to Staphylococcus
aureus and apparently lack the ability to clear this
common organism. The staphylococci in our patients did not
appear to differ in any way from organisms isolated from
patients with other staphylococcal infections (other than the
abnormal reaction that it caused). We found no evidence of a
family history of the disease in any of our patients, but the
recent report reopens the possibility that there may be a
genetic predisposition to the disorder, and we should continue
to search for the underlying, possibly inherited, cause.
We think it is important to add that we found an excellent
response to the treatment regime that we introduced, namely
rifampicin 300 mg and clindamycin 300 mg, both orally
twice daily for 10 weeks initially, with some patients needing
more than one course of treatment to produce lasting
improvement. Both drugs are excellent antistaphylococcal
agents and safe to use long-term, but rifampicin also has
excellent penetrative powers (including into abscesses) and
additional immunomodulatory properties. (Rifampicin should
never be used alone because of the risk of rapid development
of resistance to it.) We feel that the patients described might
benefit from a course of this treatment.
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