Leopard Syndrome

Our son appu is suffering from Leopard Syndrome. We wish to get updated information about the disease and also would like to be in touch with parents who are also in the same situation.

We are from the south Indian state of KERALA.

Any information about this disease will be appreciated.  As well as any information about support groups we can contact to find others who have this disease.

Thank you so very much.

Vijay

[Alan Rockoff, MD]

LEOPARD Syndrome refers to a hereditary condition which affects the skin, heart, and other organs.  Here is the URL of a patient support group: http://groups.yahoo.com/group/leopard_syndrome/

Perhaps there is a physician in your region with experience with this condition.

Best.

Dr. Rockoff