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Leukocytoclastic Vasculitis - Does it ever go away?

I am a 32 year old male.
Recently I was diagnosed with "Leukocytoclastic vasculitis".

As I have been reading, 50% of the patients diagnosed with this never find the cause of it. Currently my Dermatologists thinks it might have been a reaction to my old blood pressure medication - Amplodipine/Benzapryl.

I have been suffering this for about 5 weeks.
It started out with the usual red spots/rash that are common with Leukocytoclastic vasculitis. After a few days I ended up getting the extremely painful lesions on the feet and ankles. (Any google image search for Purpura lesions will show you what I am talking about).

The Dermatologist sent me to see the Hemotologist. After about two weeks they started me on 150mg of Lovenox (blood thinner). Within three days the lesions started to dry up and heal.
The hemotologist also thinks that I have a blood clotting disorder called "Antiphosphlipid Antibody Syndrome". So they now also have me on 10mg/day of Warfarin.

It has been weeks now, and while my lesions are healing, the red rash continues to fade, and come back. Almost on a daily/bi-daily basis.
Is there anyone else that has had this sort of thing happen, and have it go away completely or at least for a good length of time?
I am getting a little beat down by the fact that some days its almost all gone, and I wake up the next morning and my whole body is covered again in the red rash.

I also will see a Rheumatologist next week, just because both the Hemo, and the Derma think they might have an opinion as well.

Medical bills are starting to pile up, and it seems like no one really knows if this will ever go away.

Thanks!
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Avatar universal
Hi,
I am 27 year old. I started to see these red spots you are talking about right after giving birth to my so, at the age of 22. Doctors could not determine what it is, and it took them about 2 years to diagnos me with LCV (lycositoclastic vasculitic). then it took them another year to try medications. There are 4 types of medications that helped, and reduces the frequency of the spots appearance. the first is colchicine taken 2 aday, predinisone (only at severe rushes) 10 mg once a day for 1 week, ranatidine twice a day, claritine!!! it is knnown to be an alergic reaction, but no 1 knows to what. using those medications i have reduced the frequency from every day to once a month, twice a year and even longer... now i got the rush yesterday after 2 years!!! yes, the medications help, but you have to search yourself what type of food inhence the rush even more. for me; orange, lemons, chocolate and red wine do it. try to see what you eat and if you get a rush after that particular food. this will reduce the frequency. but, just so you know, it will never go away, it will only delay appearance!
Good luck'
Olga
Helpful - 0
Avatar universal
I had vasculitis, and after 5 weeks trying to find out what it is, and 5 weeks of active treatment on prednisone (with an additional 5 week weaning period), I can happily say I am in the clear.  I have some residual scarring and hyperpigmentation, and the occasinaly itch/sharp pain, but other than that...

did you ever get yours sorted out?
Helpful - 0
Avatar universal
Drug induced LVasculitis should clear, but then the drug gets attached to the proteins and takes time to clear.You will soon get recovery being treated effectively.
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