I was curious if anyone else has had long term issues, including nerve pain or numbness after Steven Johnson's Syndrome. I had SJS after taking an antibiotic years ago and have had sensations of being electricuted, stabbed, and pin and needles since a few months after the episode. It occurs in my extremities and face. I have muscle spasms and weakness. Large areas of skin on my thigh are completely numb. I still have odd rashes and discolorations, and an increased sensitivity to the sun and topical allergies. I have dry eyes, and eye pain and redness that doesn't seem to be associated with allergies, but I could be wrong. Joint pain, swelling, and trigger fingers. My arms will blanche, fingers turn blue, then my hand becomes flushed and red, almost swollen. Tests have so far ruled out autoimmune disorders and I have no idea what the heck is going on. A co-worker of my mother says she has had nerve pain and numbness since her SJS, but I don't know if it is a sound enough theory to bother a neurologist about.
Has anyone else had long term problems due to SJS? What are they?