DERMATOLOGY COMMUNITY
Mastocytosis

Mastocytosis

Hi Doc!

My mother has been diagnosed as having Mastocytosis.  It took doctors 10 years to diagnose her because of the rarity of the disease.  For the past 4 years i have been showing the same exact signs and symptoms.  I have the same rashes in the same locations as she.  I have been tested for the disease,  but tests came out negative.  I have argued with my doctor that i should be tested DURING an outbreak,  but he just  po po's me as if i don't know anything.  Am I correct in assuming that results will be more accurate if I do get tested during an outbreak?  What else can you tell me about mastocytosis?
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