My mother has been diagnosed as having Mastocytosis. It took doctors 10 years to diagnose her because of the rarity of the disease. For the past 4 years i have been showing the same exact signs and symptoms. I have the same rashes in the same locations as she. I have been tested for the disease, but tests came out negative. I have argued with my doctor that i should be tested DURING an outbreak, but he just po po's me as if i don't know anything. Am I correct in assuming that results will be more accurate if I do get tested during an outbreak? What else can you tell me about mastocytosis?
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