A member of my family has been diagnosed with Cutaenous Mastocytosis. They have been seen at the Mayo Clinic in Jacksonvillve, and had many tests / samples taken none of which contained anything other than Cutaenous Mastocytosis. No doctors to this point have been able to help or treat this condition. They have tried Antihistimines and Gastrocrom. Nothing has helped so far, do you know of any doctor that specifically treats this rare disorder? Thanks!
You are correct that mastocytosis, in which the skin is infiltrated with many mast cells that release histamine and other chemicals, is rare. No doctor or clinic's name in particular springs to mind. Certainly the folks associated with Mayo would know what to try. I suggest you get in touch with patient support groups for this condition for tips on treatments people have tried and physicians they have consulted. One place to start is the Mastocytosis Society at http://www.mastocytosis.com/, but I'm sure a web search will turn up others.
Sorry I can't be more specific. I've never seen a case myself.
Copyright 1994-2016MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.