Dermatology  (Expert Forum)

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Mastocytosis

Answered by
Alan Rockoff, MD - dermatology, Child Skin Problems
The Rockoff Dermatology Center Brookline - MA
Welcome to the DERMATOLOGY FORUM! This forum is for questions and support regarding skin problems, hair problems and nail problems. Questions in this forum are being answered by Jasmina Jankicevic, MD.
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MedHelp Member's Question
Mastocytosis
by Sampson, Nov 06, 2002 12:00AM
A member of my family has been diagnosed with Cutaenous Mastocytosis.  They have been seen at the Mayo Clinic in Jacksonvillve,   and had many tests / samples taken none of which contained anything other than Cutaenous Mastocytosis.  No doctors to this point have been able to help or treat this condition.  They have tried Antihistimines and Gastrocrom.  Nothing has helped so far,  do you know of any doctor that specifically treats this rare disorder?   Thanks!
Doctor's Answer
by Alan Rockoff, MD, Nov 07, 2002 12:00AM
You are correct that mastocytosis, in which the skin is infiltrated with many mast cells that release histamine and other chemicals, is rare. No doctor or clinic's name in particular springs to mind.  Certainly the folks associated with Mayo would know what to try.  I suggest you get in touch with patient support groups for this condition for tips on treatments people have tried and physicians they have consulted.  One place to start is the Mastocytosis Society at http://www.mastocytosis.com/, but I'm sure a web search will turn up others.  

Sorry I can't be more specific.  I've never seen a case myself.

Dr. Rockoff

Related discussions
Member Comments (2)
by pazifij, Nov 07, 2002 12:00AM
I have commented below under another person's post on Urticaria Pigmentosa.  Isn't that another name for cutaneous mastocytosis?
(as nearly as I can tell from mastocytosis.com, it is)
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