PLEVA RELATED TO CHICKEN POX VACCINE???

[smileyskl]

MY 9 YEAR OLD HAS BEEN DIAGNOSED WITH PLEVA.  THE RASH SHOWED UP ALMOST EXACTLY 2 WEEKS AFTER HAVING A VARICELLA (CHICKENPOX) BOOSTER SHOT.  I THOUGHT AT FIRST IT WAS CHICKENPOX BECAUSE OF THIS.  WE WENT TO A DERMOTOLOGIST AFTER FIGHTING THIS FOR OVER A MONTH AND THE BIOPSY CAME BACK AS PLEVA.  I AM JUST WONDERING IF THERE IS A POSSIBLE RELATIONSHIP OF THIS CONDITION TO CHICKENPOX OR  THE VACCINE.  HAS ANYONE ELSE HAD A SITUATION SIMILAR TO THIS??  IT JUST REALLY SEEMS STRANGE TO ME, BUT I GUESS IT COULD BE COINCIDENCE.  

SMILEY

[melissabisme]

My son was diagnosed with PLEVA 2 months after receiving the chicken pox booster vaccine, spring 2007. He was 11 when diagnosed. Would love to compare notes, drug therapies with you.

melissabisme

[michele933]

I was diagnosed with PLEVA the day after I received the flu shot.  I have done some research on it and also went to John Hopkin's.  Vaccines may play a role.  Something to look into or ask your doctor to.  I checked medical websites and medical journals.

[melissabisme]

Dear Michelle933

Please share any info you can with me in regard to what the docs told you at Johns Hopkins. I an very interested to gather as much info as I can in regard to our bodies rejections/responses of these vaccines. I hope you are not in too much discomfort from the Pleva. My son has never had buring or itching with his diagnosis. I am happy to say that the therapies provided have lessened the impact of this disease. But we have not stopped therapy entirely yet.

Again, please keep us updated on your condition. It really helps to know others who are sharing in this strange disease. Best of luck to you.

melissabisme

[MiaPaige]

I am so glad I found this site.  I was diagnosed with PLEVA right after my first daughter was born almost 3 years ago.  Now that I think about it, it was right after I got a flu shot.

hmmmmm

[MiaPaige]

hey, also, does anyone know if any research organizations for PLEVA exist?  I run marathons and occasionally do fundraiser parties for other charities. I would love to raise some funds to possibly find a cure for this.  The thought of children going through what I am going through, breaks my heart.  My skin constantly feels like it's on fire.  I am scared beyond belief.

We need a cure.

[smileyskl]

I just received notification in my mailbox about response to my pleva question. (I don't know what took it so long)  My daughter was treated with erythomyicin for 3 months at a time for almost a year.  She also used a couple of different creams (one is biafine and the other I will have to call about if you want to know). I am happy to say that though she had it really bad for the first year, it wasn't as bad the second year and this year she only has mild breakouts (maybe 20 on her entire body).  We still have rx on the creams and antibiotics but haven't had to use them for about a year.  In our experience - the ABSOLUTE BEST therapy for my daughter was good old fashioned sunshine.  The more her skin was in the sun the better it began to look.  She completely cleared up in the spring and summer.  I understand that this condition can recur with a vengence and we pray that it won't in her case.  She has had multiple doctors visits for scoliosis related issues and a surgery and no doctor had any idea about pleva (only the dermatologist)  It is a very little known but scary condition.  I would be more than happy to talk to you about different things we tried.  I do believe that it is related to the vaccine and I would love to hear about your case.  Please feel free to email me at ***@**** if you would like to talk.  Best of Luck to you.

Smiley

[smileyskl]

I didn't realize I couldn't give an e-mail address.  If you have any other question for me, just post it and I will check this site every so often.  I would love to help if I can.  We dealt with this with my daughter for quite a while and have done alot of research. Most of all I understand the frustration and anxiety it can cause and would still like to learn more about this condition myself.  Just let me know if you want more information.  Thanks.

smiley

[emmamae]

Hi Smiley, I just found this forum today and have been a member of another skin forum for a while. My daughter was diagnosed with Pleva at 4 yrs old. She had over 300 spots on her body. It was horrible, but she did get diagnosed within 2 weeks of the first spots. She took two rounds of zpak and a topical steroid cream and only had it for 6 weeks. We were very cautiously happy that the PLEVA left her body so quickly and to date has not returned (it has been 6 months). She is now due for vaccines for Kindergarten and I am terrified that this will bring the Pleva back. Have you heard anything more on this?

Thank you
Emmamae