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Please Help With Burning Scalp and Chronic Hair Loss
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by Kennysgirl1123, Jan 10, 2009
My biggest problems are the following:  

My hair started falling out (I've always had long thick Hair) in April 2007.  My doctor says to date, I have lost approximately 75%.  In June 2007  woke up one morning and began to burn horribly in my throat.  I already take PPIs for Acid Reflux, so I thought GERD was the problem.  The burning never stopped from that day and still occurs everyday from about 10 a.m. until I knock myself out at night with Ambien. The burning is horrible.  My GI doctor performed several endoscopies and said even though I have a Hiatal Hernia and reflux (only upright reflux -approx. 100 episodes during time spent in upright position and NO supine reflux) was present, it couldn't be acid making me burn because I take Protonix 2 x day. I can stave off the burning throat if I don't eat or drink, but when I do, no matter what it is, the horrible buring starts.  The act of eating and swallowing soothes my throat, but as soon as I am done, the burning worsens.

A few months later, my scalp began to burn and my hair actually hurt.  It feels like the weight of my hair is being ripped out of my scalp and after the burning episodes, which usually last 1-14 days, my scalp is very sore, like someone pulled me around by my hair.  It seems like I lose more hair than usual during the burning episodes.I haven't been able to wear my hair in any style except down since this began because the pain is too much to bear. The dermatolgist told me I have Chronic Telogen Effluvium from whatever is making ill and the only way to stop it is to have someone diagnose my illness and treat it.

I also sometimes have burning upon urination, like a urinary tract infection, but none is present when tested.

In September 2007, I started having horrible Menstrual Migraines, lasting 304 days.

The only thing I can link the burning throat, scalp and hair loss and Menstrual Migraines to is that in March 2007, my PCP changed my Oral Contraceptive from Yasmin (been on for years with no problem) to Yaz.  I don't know why, but she insisted.  A few weeks later my hair began to fall out, I began to cry uncontrollably and have temper outbursts. I had horrible cramps and a very heavy period, both of which I have never had.  I called PCP and have her change me back to Yasmin.  Emotional symptoms cleared up, but burning throat, burning scalp and loss continued and worsens with each passing day.  Menstrual Migraines still come every month and put me in bed for 3-4 days. I can deal with everything that is happening to me except the awful burning throat, scalp pain and hair loss.  I am so miserable. My mother found this web site and sent it to me.  she has been on her PC day and night for the past 1 1/2 years trying to find some relief for me.  I have tried every home remedy out there. Doctors are telling me to learn to live with the burning, but that's very easy for them to say.  They are not in pain 90% every passing day. I am at my wits end and will be grateful for any advice you can give me.

I don't know if these things are related, but  I am very tired all of the time, I have chronic insomnia, my whole body aches. I am deficient in many vitamins, including Biotin (uncommon), B-12, Vitamin D and
Iron and have been taking them now for 2 + months with no change. I have a lesion on my kidney which is being followed for renal Cell Carcinoma (no change in 2 years), Pulmonary Nodules and Left Brain Lesion, all of which is thought to be harmless. I was injured at 13 and have herniated disks in Cervical Spine, (Occipital Headaches several times per month since injury in 1979) Thoracic Spine and Lumbar Spine. Spondylolosis and Disc Degeneration at L5-S1, and Degenerative Bone and Joint Disease. Numbness in tips of fingers on both hands and wrist pain (already had Carpal Tunnel Surgery in both). I sweat profusely, but am cold and clammy at the same time. I have also been having "hot' sweats lately.


Also, In 2005 everything changed and I became ill with what was then diagnosed as Pancreatitis.  I do not drink any  alcohol and my gallbladder ( healthy) was removed.  Flare-ups have persisted and in April 2007 I became even sicker, which is why I am writing in.  I have been to so many doctors and no one is able to diagnose me.  The Pancreatitis is very painful. but I can live with it.  

I know I have given you a lot of information, but the only things I am asking for help with are burning scalp and chronic hair loss.  If I can get this pain to stop, I know I can go on and deal with the rest.  The past 1 1/2 years of constant burning pain have really taken it's toll on me.

Thank you in advance for any help you can give me.  God Bless!

Sincerely,
Tina
Interests: Burning Throat since 06/07, Burning Scalp since 09/07, Chronic Hair Loss since 04/07  
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Member Comments (4)
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by BhumikaMD, Jan 10, 2009
Hi,

This could be seborrhoeic dermatitis. It is a skin disorder affecting the scalp, face, and trunk causing scaly, flaky, itchy, red skin. It particularly affects the sebum-gland rich areas of skin.

Side effects to inflammation may include temporary hair loss. If severe outbreaks are untreated for extended intervals, permanent hair loss may result, because of damage to hair follicles.

http://en.wikipedia.org/wiki/Seborrhoeic_dermatitis

Soaps and detergents such as sodium laureate sulfate may precipitate a flare-up, as they strip moisture from the top layers of the skin, and the drying property of these can cause flare-ups and may worsen the condition. Accordingly a suitable alternative should be used instead.

Among dermatologist recommended treatments are shampoos containing coal tar, ciclopiroxolamine, ketoconazole, selenium sulfide, or zinc pyrithione. For severe disease, keratolytics such as salicylic acid or coal tar preparations may be used to remove dense scale. Topical terbinafine solution (1%) has also been shown to be effective in the treatment of scalp seborrhoea,as may lotions containing alpha hydroxy acids or corticosteroids (such as fluocinolone acetonide). Pimecrolimus topical lotion is also sometimes prescribed.

A number of things can cause excessive hair loss. For example, about 3 or 4 months after an illness or a major surgery, you may suddenly lose a large amount of hair. This hair loss is related to the stress of the illness and is temporary.

Hormonal problems may cause hair loss. If your thyroid gland is overactive or underactive, your hair may fall out. This hair loss usually can be helped by treatment thyroid disease. Hair loss may occur if male or female hormones, known as androgens and estrogens, are out of balance. Correcting the hormone imbalance may stop your hair loss.

Many women notice hair loss about 3 months after they've had a baby. This loss is also related to hormones. During pregnancy, high levels of certain hormones cause the body to keep hair that would normally fall out. When the hormones return to pre-pregnancy levels, that hair falls out and the normal cycle of growth and loss starts again.

Some medicines can cause hair loss. This type of hair loss improves when you stop taking the medicine. Medicines that can cause hair loss include blood thinners (also called anticoagulants), medicines used for gout, medicines used in chemotherapy to treat cancer, vitamin A (if too much is taken), birth control pills and antidepressants.

Certain infections can cause hair loss. Fungal infections of the scalp can cause hair loss in children. The infection is easily treated with antifungal medicines.

Finally, hair loss may occur as part of an underlying disease, such as lupus or diabetes. Since hair loss may be an early sign of a disease, it is important to find the cause so that it can be treated.

It would be advisable to consult a skin specialist for his symptoms and a proper clinical examination if the symptoms persist.

Let us know if you need any other information and post us on how you are doing.

Regards.
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by Joelle777, Mar 21, 2013
I am experiencing burning throat and scalp with hair loss. This is the second time in my life experiencing these symptoms. While I don't know the cause, both times occurred a year- year and a half after giving birth, also getting insufficient sleep, dehydration and chewing a lot of sugar free gum. I have cut out the gum, hydrating myself (cutting down on coffee, more fluids) and washing my hair more frequently. I am already seeing a difference in just 1 day. Hope this comment helps someone.
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by candy145, Aug 21, 2013
Did you ever find out what was causing all your ailments?  I have had hairloss starting years ago - massive amounts like you.  The painful burning scalp ( seborric dermititus), like the weight of the hair was too much for my scalp.  And then in January I had a bout of pancreatitis.  This past weekend I had another go around with it and my hair fell out in massive amounts along with a layer of inflammed scalp.  My kidneys hurt, my side, and my back.  I have never been a drinker.  I feel like I'm hitting a wall with doctors - my next stop is the University of Michigan and/or the Cleveland Clinic.
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by nicknameny, Sep 09, 2013
I have had the same hair loss with extremely tender, burning and itchy scalp for many years and lost a considerable amount of hair in the process. In the same period of time I've also had menstrual migraines. I have been seeing an endocrinologist and a dermatologist to try and work things out. The endocrinologist has me on Spiro and Lo Loestrin to even out my hormones and the dermatologist has me on dermasmoothe and nizoral to stop the burning, itching and tenderness. Per the derm I have androgenic alopecia.