White Sponge Nevus

My husband has white sponge nevus in his mouth. Of our five daughters, three have inherited this. Our oldest has it vaginally as we as orally. She has had several bacterial vaginal infections over the past couple of years. The doctor feel that, while she may be prone to infection, the folds of the skin from the nevus in her vagina may be increasing her susceptibility to developing infection. Unfortunately, there is little information out there on genital white sponge nevus and how women cope with it, most of the information has to do with how the lesions are mistaken for other problems. We have had penicillin rinse suggested before as a way to put the oral lesion into "remission". Would the same kind of solution be useful vaginally? Does anyone in the world know anything about this?

[Alan Rockoff, MD]

I apologize, but I have no clinical experience with this condition.  I'll need to refer you elsewhere, perhaps to a gynecologist who may have treated patients with this.

Sorry.

Dr. Rockoff