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Have asked all of my doctors over the past 10-12 years - as long as I have had it. Not one of them knew anything about it. I was referred to a Dermatologist but could not afford the copay which was $50 PLUS any charges left over after insurance pays - it would have been in the hundreds so I could not go. But to be perfectly frank here. I don't believe a Dermatologist would have been able to help because in my research I've come to the conclusion that no doctor really knows the answer to this. It truly is an unknown phenomenon because even though it may be considered RARE - there are THOUSANDS of people out there with the same condition - and none of them have been able to get a clear dx of this condition.
Have asked all of my doctors over the past 10-12 years - as long as I have had it. Not one of them knew anything about it. I was referred to a Dermatologist but could not afford the copay which was $50 PLUS any charges left over after insurance pays - it would have been in the hundreds so I could not go. But to be perfectly frank here. I don't believe a Dermatologist would have been able to help because in my research I've come to the conclusion that no doctor really knows the answer to this. It truly is an unknown phenomenon because even though it may be considered RARE - there are THOUSANDS of people out there with the same condition - and none of them have been able to get a clear dx of this condition.