Are you sure that you have the right name for your problem, since it is also known as Acral Peeling Skin Syndrome among others, and since I've investigated a little, I found out that it is a genetic problem not viral as you suggested through your replies to people with same/similar problems on this forum. Is it possible that you have something else?
But as you have this problem (of peeling skin of the fingertips) for much longer time then me I would like to ask you what are you thoughts on that.
Some of the web sites I came across dealing with researches on this topic (also included images of condition) suggest that it can happen when there is a sudden change of heat/cold and humidity and will affect skin and cause the condition (but only with people with TGM5 mutated gene) and the only affected areas are those on palms and soles.
The internet is an invaluabe resource, when used within its limitations. While there is a wealth of information, there is little accountability. The condition of cracked skin that begins to peel from a focal point outwards has been largely ignnored by dermatologists as excema and self diagnoised as exfoliative keratolysis. Now many of you seem to be sharing symptoms and advice with little success.
I too suffer from something similiar to what you are describing, but feel this forum is doing little to alleviate the problem. Thats why I just started a yahoo group for us to congregate and share information. The group is strickly informational and free to join, you dont even have to have a yahoo account. Simply send an email to Keratolysis_Exfoliativa-subscribe @ yahoogroups.com (minus the two spaces to the left and right of the at). I hope you all join and see if we cant tackle this condition ourselves. Thank you.
ps the group can also be found by searching yahoo groups for: keratolysis exfoliativa
I too have endured KE for 20 + years. It appeared out of nowhere when I moved from New Zealand to Germany. I initially attributed it to a change in water, climate, diet, lifestyle. I left Germany and he peeling palms came with me!
Doctors in various locations in the US prescribed a myriad of steriod creams that worked ok short term - but actually did minimal good long term.
I finally diagnosed my condition thanks to Dr. Google. The example pics for EK could be pics of my own hands.
LacHydrin has worked for me in the past - and I recently purchased rea lo 30 - a urea cream that seems to be doing the job.
I am tired of being embarrassed by constantly peeling, healing, peeling, healing, peeling palms! I wish there was a CURE but know that at this point, that's not possible so it's a matter of maintaining a socially acceptable level of skin health.
All suggestions welcomed!
my 14 year old has had EK for 4 years. we tried products with urea and really no help. we did find a product in Pier One stores called Green Tea lemongrass lotion. in winter his hands seem to get better(about 80%)
summer is the worst especially when he swims. ut of texas doctor told him to put vasaline on his hands before he goes swiming. ill keep you posted on that new ideal
Have suffered from this for about 6-8 years now - on and off - saw a Dermo once - said - no known cure - he himself had it when he was younger... Said it may go away for good - may come back... thanks for coming.... Cheers!...
It did go away for a year.. comes back in summer - not a problem in winter. this year on hands- a little on feet. mainly on palms on heavy contact areas (outer edges where hands rest when on computers). Also have the hardening of nails with skin peeling back from under cuticles.
Not as bad as it used to be in previous years but very annoying nonetheless...
Maybe one day a dermo who suffers from this condition cronically will come up with an answer ???? In the meantime I read on with all the rest of us in hope our combined temp measures to combat/manage may lead to something long term... My suggestions: stay off computers ? - keep contact points "cool" somehow ? - moisturise etc.... ahhhhhhhhhhhhhhhhh
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