leukocytoclastic vasculitis

For roughly ten years I have been dealing with leukocytoclastic vasculitis.  This diagnosis was concluded thru biopsy several years ago.  I have also seen an allergist....he concluded that he would not be able to pin down what may be triggering my immune system response thru allergy testing.  I am now to the point that i have a continuous reoccurance of red spots primarily on my legs and feet........as existing spots fade to a light brown, new ones reappear.  I do not have any health issues, rarely get sick, have never smoked, don't drink, and eat a somewhat healthy diet.  I have spent the last five years searching for remedies / mental relief from this condition.  From talking to several doctors and researching this condition, I am drawing a conclusion that nothing can be done for my condition.  I am simply writing to see if you have any suggestions that may improve my condition, or if you could locate a doctor somewhere on this planet that specializes in Leukocytoclastic vasculitis.  If such a doctor exists, I am ready to travel anywhere in the world...if there are answers out ther to the mystery of Leukocytoclastic Vasculitis.
Any help / info will be appreciated


This discussion is related to Leukocytoclastic Vasculitis.

[veronica08]

I was recently diagnosed with Leukocytoclastic Vasculitis. They also told me that there was no cure. I did not accept that answer. I searched to high heavens for answers. I found 2 things, that in my opinion cured my vasculitis, let me say again CURED. I replaced all my liquid in take with water, ONLY DRANK WATER. And finally I take 2 tablespoons of liquid coral calcium a day. These two things have cured my vascultis. Do not take any steroid shots, pills, or creams, they cause more harm than good. Understand your illness then address it, there is not quick fix.

[LV313]

I was diagnosed several years ago and was also told that there was no cure. I sought a second opinion and found a doctor that specialised in brain fuels. He tried me out on Lexapro, not as a cure for depression, but as a way to increase the brain fuel serotonin. From the first day I started taking them, I have been much better. I have had to increase them over time, but am now at a point where I believe I have reached the best balance. Basically what happens is that the brain thinks there is something wrong so tells the immune system to work overtime. This results in the problems associated with LV. Now I only get mild symptoms when I am very run down or am pushing myself too hard mentally. I am not sure that this is a cure for all to look at, but it has helped me tremendously. As for the Coral Calcium idea, I would love to learn more as brain fuel drugs can have some unwanted side effects such as weight gain - although this is a minor issue compared with the problem of LV.

[beacon927]

My symptoms were kept under control for several years by cyclosporin, but now I have stopped responding to that.

Why should coral calcium work?

[ngeremesz]

I was diagnosed with this disease and have been trying to find a natural way to cure it.  I don't want to have to deal with the side affects of medication.  I'm not on any meds, but I am over weight.  I believe this came about due to the amount of food additives/chemicals I take in.  It's sad to see how much additives/chemicals are put into the food we eat.  I've been trying to pay close attention to what I eat and it seems to help but I still break out.  From what I've been reading, it almost sounds like this is an autoimmune disease.  Any suggestions as to what I can do naturally to cure this, is greatly appreciated.  Do you think by boosting my immune system would help?

[beacon927]

I am interested to hear that you think diet can help?  Is it just by avoiding additives or anything else?  

[curemybrother]

Trying to help my brother with his LV which is so severe that he almost lost his legs over it.   The swelling is so bad that fluid oozes out of his legs.   the soars that he forms almost overnight is the size of baseballs and when they open up, they expose the bone.  His legs are as scared up as a burn victom.   I haven't heard many others describe it this way.   Do you think he may have a different problem other than LV?   He is only 50 years old and is 100% disabled and has been for 10 years now.  Any ideas at all?  

[Kate4862]

I am very interested in your comment about curing your vasculitis - can you give me more info on it? Thank you.

[mausy3]

I have also been diagnosed with LV, had it now for over 20 years and the rash is now up to my waist.  As soon as one rash fades another appears.  I have tried the elimination diet, I dont drink or smoke and eat healthy.   The doctors have no idea what triggers it.   Can you tell me more about this liquid coral calcium and the side effects etc. I do think stress may play a part in this disease but any information would be a great help.  Thaniks.  mausy3

[KimberXXX]

I also have leukocytoclastic vasculits and have been trying to find natural cures. Thank you all for posting. Any help and suggestions are appreciated. To date I haven't found anything that helps. I was free from the outbreaks for aprox 5 years and it has been reoccurring since September

[ho13]

Dear veronica08,

I interested with your experience to cure the problem of LV, I have this specially on my legs, red dots color.
I am a lady 54 yo, I have been with LV since I was 18 yo.
So many medicines I have had tried before. For a few years they gone..., but they come back, and back again...
I feel give up, stressful and sadly every time when I look my legs!!!...
Could you please tell me, you taken LIQUID coral calcium, how about the TABLET coral calcium, is this the same work?... What the different between Coral Calcium and Normal Calcium, like a Caltrate Plus?... (Caltrate Plus with 400IU Vitamin D & Minerals contains 600mg elemental calcium and now with 400IU of vitamin D in each tablet).
For how long I must take this calcium?... and When the results I can see?...

Thank you very much for your answer and helping me.

Kindest regards,
ho13
Perth
Australia.
  

[beegee1290]

I have Acute Lymphasitic Vasculitis and get the same they gave me DAPSONE and it simes to help see your doctor and ask about this there are a number of poeple on this drug who have vaculilis illnesses