support groups for parents of child with dermatomyositis

hello im new to this ,my daughter has dermatomyositis and i really would like to talk with other parents who have children with this disease is there any support groups or chat rooms anything out there to keep me sane thank you


This discussion is related to calcification /dermatomyositis.

[Noel777]

We just found out that our daughter has dermatomyositis.  She has been ill since Oct of 2007 and we came across a good doctor that was able to recognise this disease.  Her muscles and skin are being attacked and I feel helpless.  I am new to this and found your open discussion question from a few months ago.  Have you had any luck in finding a group and if so, could I join?   I feel alone in this.  Thank you

[ryant16]

I am 17 and have had dermatomyositis for 5 years. i know a lot about medacines and alot of others stuff, seeing how i have tried many of them. any questions email me at ***@****