This patient support community is for questions related to juvenile diabetes including
Celiac disease,
depression, diabetic complications, hyperglycemia /
diabetic keto-acidosis,
hypoglycemia, islet cell transplantation,
nutrition, parenting a diabetic child, pregnancy, pump therapy, school issues, and teens with
diabetes.
I want to share with you a true story about another young woman (college age) who wrote to us at ODST, fearing that she was turning into something she didn't like after being angry at the world since her diagnosis. I took this request and have been communicating with her and have seen a remarkable change of attitude. She seems to have been able to find a peace with her situation and I truly believe the correspondence has helped her find an outlet for her emotions. While no two teens are alike and we of course cannot promise miraculous changes in his life, we parents can never give up our efforts on behalf of our kids. I happen to be the type 1 diabetic in my family, and I fully understand how lonely and sometimes frightening the walk of a young type 1 diabetic can be. In my case, I have lived with the disease for 34 years and am doing well. Let's hope your son benefits by your efforts to seek help for him, and that he can find healthier outlets for his needs at this age. He should know that his mom cares for him deeply in that you cared enough to seek help. You will hear from your ODST response person soon.
Depression is not uncommon among those of us with chronic diseases. Bi-polar is also now more "looked for" among younger & younger folks -- where traditionally it was thought to emerge only in adulthood. Now researchers understand that it does emerge in children, too.
I wish you the strength & faith to work thru all of this. I do remember all too well the terror and powerlessness we felt (and still feel when she goes off her meds. I believe that ODST folks will be a terrific support for you, too.
To put it bluntly - imagine every waking moment of every day with the realization that the condition you have is one where no one can fix and that it will never go away and that you have no real idea how you got it in the first place.
Imagine being a soldier on a battlefield - where you arrive only to find out that you lost the battle before you even knew there was one in the first place. And it was a battle you couldn't have won anyway.
You get diagnosed and your life as you knew it is suddenly is destroyed - and destroyed is a mild way to put it.
You want to lash out at everyone and anything because you feel helpless in knowing there's not a thing in the world you can do.
If you're religious - you pray for deliverance and miracles that never come. When your prayers go unanswered and not a single angel comes to your aide - you tell God to kiss your butt and flip him/her/it the bird. To you - God is dead.
You look at your own body and go "Well, if you want to destroy yourself, be my guest you defective piece of junk."
Acceptance? Doctors and counselors always love to throw that word out there. Who in their right mind would accept something as horrible as this?
Control? Another word that bounces off you like a lead brick. Heck, if you could "control" this chronic illness, you could tell it to "go away."
At first you're scared - especially when you're told all the horrible things Diabetes can and will eventually lead to.
Then you get extremely angry - especially at those who don't have Diabetes and stuff their faces full of food and sweets you can no longer have. You get to the point where you believe you don't have to be nice to anyone ever again. You were a good person before this happened and you still got this. What's the point being a good person now? If you're not Diabetic, you're not worth the time of day to me so get of my way jerk.
Then, after awhile when you've vented to the point where your anger is all used up, you get depressed. The "this is with me forever and it hurts" feeling sinks in. Because you're not really all that hateful. You're just miserable. And you hope you haven't run all your friends and family away.
You know what you should do, in my opinion, is let him know about this site. He can come on here and talk with other type one diabetics. This is the best way I find to slowly accepting the disease, or at least hearing other people's struggles and relating to them. And, hearing other peoples success is a great motivator to making yourself healthy.
http://www.strugglingteen.net/