This patient support community is for questions related to juvenile diabetes including
Celiac disease,
depression, diabetic complications, hyperglycemia /
diabetic keto-acidosis,
hypoglycemia, islet cell transplantation,
nutrition, parenting a diabetic child, pregnancy, pump therapy, school issues, and teens with
diabetes.
What I don't understand is why there are so many nurses/educators/writers who feel so compelled to convince children that their lives are over when they get diabetes. Why would this ignorant nurse say such a strange, mean-spirited thing to a child? This kind of stuff matters a lot when you're a little boy or girl. When I was a kid with diabetes, people would give me these doom and gloom books with titles like "When Dreams Shatter" that were aimed at convincing me my life with diabetes could never be normal. Or my teachers would tell everyone (incorrectly) not to let me have sugar EVER or a doctor would tell me that I have to wake up EVERY NIGHT in the middle of the night FOR THE REST OF MY LIFE to test my blood sugar. Well, now I'm an adult with extremely tight control who has a completely normal life, complete with gum, sugar when I want some, and a good night's sleep -- albeit with a whole bunch of shots a day.
You can tell your grandson that he need not listen to what EVERYONE tells him. Get him a subscription to Diabetes Forecast -- I devoured it in my youth and learned so much. Tell him that before he knows it, diabetes will be totally normal to him and he should take pride in learning so much about how to take care of himself. He'll find that EVERYONE thinks the rumors they've heard are true and everyone has plenty of misinformation they're more than willing to spread. He has to arm himself against it, and he should be extremely vigilant when it comes to finding a GOOD doctor, and he must develop good instincts for that search. What do you call a person who graduated last in his or her med school? Give up? Doctor.
Tell him I said good luck.