This patient support community is for questions related to juvenile diabetes including
Celiac disease,
depression, diabetic complications, hyperglycemia /
diabetic keto-acidosis,
hypoglycemia, islet cell transplantation,
nutrition, parenting a diabetic child, pregnancy, pump therapy, school issues, and teens with
diabetes.
Good luck, tho'. You really do seem to be working diligently to manage your diabetes and that's a gift to yourself that will pay you repeatedly into the future.
When I have increased the level to 100 mg, I started to have pain again. I have since learned that B6, while helpful, can increase pain of neuropathy in higher doses. I am now experimenting with high doses of B12 (1000 mg daily) along with Alpha-Lipoic acid (600 mg) to try to improve the response in nerves I have left. Alpha-Lipoic acid has been used for 50 years to treat neuropathy in German, and the Mayo Clinic has recently studied its effectiveness (see http://www.mayoclinic.org/news2003-rst/1733.html )
As for your ENDO not believing in supplements, mine is the same. She apologized to me, however, when I told her specifically what I was doing and why. Supplements are a big rip-off industry today, feeding the mass market a lot of expensive junk that has no proven (or even implied)effectiveness. It's no wonder the medical community has a poor opinion of it.
In my opinion (not medical), B vitamins (especially B6 and B12) and Alpha-Lipoic acid are beneficial for diabetics with compromised nerve health. Do some research on the web (verifiable medical research), become well informed, and then approach your ENDO again.