We just started a support group on Yahoo groups called Friends with Gastroparesis awareness project. Feel free to check it out. This is a hard diesease to deal with, we are hear for her if she'd like.
I am the mother of a young female who had cancer as a pre-teen and now has gastroparesis all related to the chemo she took and was wondering if there are any support groups or individals that could help for relate or deal with this better.
Brenda
Spport groups for gastroparesis
You can go to www.digestivedistress.com
This site has a forum. The president of the US based non-profit is a type I diabetic with gastroparesis. She has a lot of insight and suggestions regarding gastroparesis and its affect on diabetes.
Best regards,
Jeanne
Hello Kristy
the president of the Gastroparesis and Dysmotilities association is a type I diabetic with gastroparesis. There site has a forum for posting questions.
Try: www.digestivedistress.com
They also have educational pamphlets on their site related to diabetes and gastroparesis
No registration is required and info is free for the asking
best regards
jeanne
Here are a coupla other sites you might find helpful if the leads from SS don't bring enough responses:
http://g-pact.org/newsletter/july04.htm points to --> http://health.groups.yahoo.com/group/pediatricgastrosupport/
(This is primarily aimed at folks dealing with pediatric gastro)
http://www.gpda.net/
(A general gastro organization site)
How To Start a Support Group:
http://diabetes.about.com/cs/supportgroups/a/support_groups.htm - 34k (This sounded promising, but you might need to register; I couldn't see the article; try the archives or webmaster ...)
Contact organizations for info on starting/joining a gastro support group (scroll to the bottom of the page at the site below):
http://www.medformation.com/ac/mm_qdis.nsf/qd/nd0519g.htm
Hello Kristy Mari,
First I want to apologize for not answering your question yesterday. Also, I need to let you know that I am not a medical professional, but a mother of a boy who is living with type 1. My son was diagnosed 7 yrs. ago at the age of three.
You may have already found this, but below is a link to a yahoo support group.
http://health.groups.yahoo.com/group/gastroparesis/
Another idea is to talk to your Endocrinologist and ask. Possibly they have a bulletin board and you can post a flyer and try to start a support group in your area. It does not hurt to ask. Go for it.
Also, there is a cool website (non-diabteic related) where you can post different types of ads for FREE. You simply click on your city (on the right-hand side of the page) or the city nearest to you and then look to the upper left of the page where it says COMMUNITY and there is a sub-category for GROUPS. Then click post and type away. Craig's List is a very well known website and has many visitors.
Go to:
www.craigslist.org then find your city on the right side.
I wish you the best of luck and hope you find support in your area.
Take care:)
SS