Diabetes - Type 1 Community
what is the oldest living person with type 1
About This Community:

This patient support community is for questions related to juvenile diabetes including Celiac disease, depression, diabetic complications, hyperglycemia / diabetic keto-acidosis, hypoglycemia, islet cell transplantation, nutrition, parenting a diabetic child, pregnancy, pump therapy, school issues, and teens with diabetes.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

what is the oldest living person with type 1

I was wondering how old is the oldest living person with type 1 diabetes?  More important how long has this person been a type 1? I am 42 years old and was diagnosed with juvenile diabetes at age 2.  I have many complications now.  I'm surprised I made it this long.
Related Discussions
44 Comments Post a Comment
Blank
Avatar_n_tn
my mum is 54 and been type 1 diabetic since she was 30, thats 24 years with no coplications.
On the other hand, i'm 19 and am diabetic (type 1 as well) since i was 9, 10 years WITH complications, my legs have been damaged.
Avatar_n_tn
Hi!  I'm sorry to hear about your complications.  I can't find any specific record of age, but I do have a good friend who is 74 and was diagnosed at age 9.  I've heard stories of people in their 90's.  It's all about how well you manage your disease.
Blank
Avatar_n_tn
Not only does tight control make a difference in whether people get complications or not, but there seems to be some genetic component, too. Some folks who take excellent care of their glucose numbers get complications, while some who are more lax don't. However, studies have proven that tight control DOES help prevent complications no matter whether you are one of the "lucky" ones or not.
Blank
Avatar_n_tn
Thank you for your answers.  But how does someone with type 1 in their 90's achieve the goal of taking care of themselves?  I've had this disease for 40 years.  Since the age of 2.  I know there was nothing for diabetics back then.  One shot of NPH was normal, and testing your urine was a way to guess what your blood sugar was.  Now...if you had a full bladder for a few hours, the test results were wrong.  Maybe 2 hours ago your sugar was high.  But 2 hours later you are having a hypo.  But the urine test showed your sugar being high.  I know I was in denial for over 30 years.  I never took care of myself.  Maybe this is why I have complications.  But a few of my type 1 friends never took care of themselves either.  They have no complications.  So who knows if it is genetics?  It certainly can't hurt keeping your blood sugars under control though.
Blank
Avatar_n_tn
Part of my friend's longevity he credits to luck, but also to a fanatical parent who banned sugar from their house.  His family changed their lifestyle to support the changes required.  They used every since management principle for diabetes that they could, and stuck to them religiously.  Taking care of yourself is what gets you to old age as a diabetic.
Blank
Avatar_n_tn
It's funny that this question just came to me out of the blue.  Next year my parents will celebrate their 60th wedding anniversary. My mom has always said how against dad's family was of the marriage because they told him she would always be sick and likely never have children.  Mom was 9 when diagnosed.  She did have trouble carrying pregnancies to term but there were 4 of us that made it.

Mom is going to be 75 in Feb.  She wears reading glasses only.  She has all of her teeth and all of her toes.  She takes great care of herself...so great that us kids never knew she even had it.  Yes, she has had complications and jumps on each one.  She also tries "new" procedures as they come up.  One thing she said to me once is that she does not like to go to the hospital where doctors try to tell her she's doing everything "wrong" and she ends up getting all screwed up.  She's been doing it long enough to know her own body.

But anyway, I was also curious a to how old the oldest is because my mom is quite proud of her status as "one of the oldest".
Blank
Avatar_n_tn
Hi,
My father lived to 77 years of age, and was T1 since his teens. He suffered very little in the way of diabetic complications. I'm hoping the same will be the case for my son, T1 since 2years of age.
My father had a regular routine as a dental surgeon, did no formal exercise, drove everywhere, and drank in moderation most nights. He also smoked for all of his adult life.
Blank
Avatar_n_tn
I think I may have found the oldest people with diabetes.  <a href="http://professionaled.joslin.org/1083_2713.asp" target=_blank>Robert Cleveland and Gerald Cleveland</a> are brothers in their 90s and have dealt with diabetes for over 70 years each.
Blank
Avatar_n_tn
I turn 52 on July 14. I have had type 1 diabetes since I was 1.5 years of age. I'm having some complications but continue to fight it everyday.
Blank
Avatar_n_tn
The October 2008 issue of Diabetes Forecast lists some folks who have had type 1 for well over 60 yrs., It's quite inspirational. I've had type 1 for 38 yrs. diagnosed at age 7 and thankfully have only some mild retinopathy.
Blank
Avatar_n_tn
i was diagnosed with type 1 diabetic at age 7, i am now 54yrs old had a really nice life, ate everthing they told me not to eat still no complications. i guest i'm just one of the fortunate ones THANK GOD.
Blank
711096_tn?1229360224
I have been type 1 for over 34 years and no serious complications.  I do stay pretty active and try to stay on top of my control, but..... I think that is difficult for anyone.

The recent advances in insulin therapy definitely make it somewhat easier, than the old test your urine days.

But in answer to the question check out this link.  I found the story interesting

http://www.diabeteshealth.com/read/2007/09/21/5436.html

Peace

Michael
Blank
Avatar_n_tn
I'm reading this from Roatan, Honduras where I am vacationing with my 91 year old father, a type 1 diabetic since his youth.  Getting old but still healthy.
Blank
Avatar_m_tn
for god sake
take care of your diabetes live your life
and let it be
dont be so morbid about it
its your fault you didnt take care of it
and now your dealing wiht your problems
other people should use you as an example
sorry to be so harsh
Blank
Avatar_n_tn
Boy are you uneducated about the disorder.  First of all, type 1 and type 2 are completely the opposite.  Where type 2 is most likely the result of poor eating habits and lack of exercise, type 1 is by birth.  I have been a diabetic for 47 years.  No complications and I try to watch everything I do to take care of myself.  The only thing that makes me so angry in life is to hear someone say 'you caused this so deal with it".  I didn't cause it, I was born with it, my pancreas has never worked and I have dealt with it the best that I can with education and compassion of a lot of excellent doctors.  Learn about a disease before you condemn all people with it as something they "did to themselves."
Blank
Avatar_n_tn
Wow, finally something and people I can relate to.  There is no one in my area but me at my age with Juvenile Diabetes.  My doctor tells me I should be extinct.  I have been a juvenile diabetic since the age of 6.  I am now 56, so 50 years so far.  I am doing quite well.  I have been married for 38 years, have two adopted children and have four grandchildren.  I work 50-60 hours a week at a very stressful job.  People often will say, "You can't be diabetic, you are too thin."  I weigh 95 pounds and am 5' 1 1/2".  Even my health insurance company drives me nuts.  Join this group, read this pamphlet and tell us if this helps control your diabetes.  It's always based on if you lose this much weight you can control your disease.  Good grief, I know more about this disease than any doctor I've ever gone to, except for my first pediatrician, who was way beyond his time on how to manage juvenile diabetes.  I am not alone!
Blank
Avatar_m_tn
Hi! I'm a 40 year old who's been T1 since the age of 6. Just wanted to say that I came across this site by accident and after reading the comments it has really inspired me to practise better control and given me confidence in the future.To be honest i have been in denial of my diabetes for 25 years; erratic blood sugar levels, and just not taking care of myself ( apart from doing a lot of physical exercise on a daily basis).I have changed all that in the last year by keeping tight control of my blood sugar levels. I have some mild retinopathy and sometimes some tingling in my toes but aim to be around for another 40 years.thanks, marcus
Blank
Avatar_f_tn
Hi zoeysgram, I'm Zoe! Congratulations on managing this disease for so long and well!

My situation is a bit different, I'm 60 but wasn't diagnosed until I was 58! I was misdiagnosed at that time as Type II but was recently confirmed to be Type 1.5/LADA. LADA is more like Type I than Type II. They believe 15% of Type 2's are misdiagnosed because they are older so people assume they are Type II. Yep, docs don't know everything!

I also go to the website *********.com and a man there who has been T1 for 63 stories has a syndicated story on the site of his life and management of diabetes that is quite interesting. I feel lucky that if I had to get this disease I got it today when there is so much more understanding of how to manage it. Great thread!
Zoe
Blank
Avatar_f_tn
It is also a  bit about attitude, have a good attitude ,don't worry about it, be happy, thank God for every new day and remember there is always somebody that is in worst conditions. so live your life and have FUN!!
Blank
Avatar_n_tn
I have been diabetic since age 10 and am now 49 yrs old.  I agree with many who say attitude is everything, along with parents who educated themselves and me during my childhood and sent me to diabetes camp. My friends kept a watchful eye on me as well.  Education, constant blood sugar montitoring when it became available and watching for potential downfalls has kept me healthy and working full time (and more) and blessed with three children.  Sure, I get down sometimes but my family, friends and kids keep me going.  You have to control your diabetes...don't let it control you.  Laugh a lot and surround yourself with people who care.
Blank
Avatar_m_tn
My father, who is now 68 years old, was diagnosed with type one juvenile diabetes when he was six.

His parents, his mother in particular, became dedicated to learning all they could and teaching my father to take care of himself. They changed the way they ate and lived to care for him as a youngster.

As an adult he attended university, married, fathered two children, and worked until his mid 60's. Now he is retired. His vision is giving him trouble, with small blood vessels bursting in the eye and needing to be removed with laser surgery. He has all of his fingers and toes and is (TMI WARNING) still able to be sexually active with the little blue pill as an assist.

A recent hospitalization after a auto collision brought home to us how little most of the medical community knows about type one. His stay was a week long nightmare of trying to get the kitchen to deliver low carb no sugar meals (BBQ chicken slathered in a brown sugar sauce does not count as just a protein! A cup of corn is not just a vegetable!) and arguing about blood sugar tests and insulin amounts and timing.

On the final day, as they were releasing him, he had one more frustrating conversation with the doctor, who finally said something that made it clear to my father that they had been treating him as a type two all that time. The doctor was flabbergasted to be dealing with such a "elderly patient" in such good condition, with type one.

I don't know how long my father will live, but I agree with those here who say that careful control, advocating for yourself with the medical community and then living your life with a can do attitude will go along way towards quality of life over the long haul.
Blank
Avatar_f_tn
There are a lot of comments here and over a few years so adding my little bit and hello to everyone.
I cant answer the original question as I don't know who the oldest type 1 is, although its been answered anyway.
I have been diabetic since 14 and am now 42. Despite offending people I knew when I was in my 20's I thought by the time I was 40 I would be unwell, needing to be looked after, not wanting my children to have to take care of me so maybe not wanting to be around.
Now I'm in my 40's thanks very much but I would like to say in 20 years that I made it to my 60's. If I can get to the age of some of the people described above, I will be very happy. Well done to all those people.
I can't say I have been well behaved, far from it. I don't have too many problems but having some eye issues late last year made me realise what I was doing to myself and after all this time now actually want to do things right, not just because a Dr told me to.
Took me far too long but better late than never I guess.
Blank
Avatar_f_tn
Hi,
It's really great to hear of all these long living diabetic people. I'm 50 and was diagnosed type 1 when I was 17. So far I have nearly always worked full time - earlier as a nurse and more recently as a primary teacher. I have one beautiful daughter now 19 and I suppose that's why I asked the question of life expectancy. She is at uni and plans to be a Lawyer so lots more years before grand children. I don't think I have any complications though I do visit the doctor more regularly now for the type of things that everybody gets. My biggest problem now is weight gain due to inactivity and work related stress. How do you motivate yourself at 50 to keep on with the much needed exercise. I feel that physical activity is the key to a healthy existence but don't have the energy to keep it up! Long life and good health to us all!!
Blank
Avatar_n_tn
I have been diabetic since age 4 and am 45 now. I am and have been 5'7", 135 lbs for 20+ years and have had no complications. New eye doctor I went to last year is amazed at how good my eyes are with having diabetes so long. Treatment sure has changed a lot over the years.
Blank
Avatar_m_tn
I have been a type 1 diabetic since i was 13 months old and im 23 years old now, and im sick of it all.
Blank
Avatar_m_tn
I have been a type 1 diabetic since I was 13 months old, Im 23 years old now and Im sick of it all.
Blank
Avatar_f_tn
life is not about the abcense of challenges but the conquest of those challenges...am writing this for my 3 year old son Karl diagnosed with this strange disease..unheard of in Africa, or so i thought then!  ....many people though he had been given a death sentence that fateful day saturday 23rd May 2009........its now a year .......and his last HBAIC was 6.9.....I am proud of you son for your braveness and if God allowed you to have type one its only because he thought you strong enough to conquer this challenge!....May you live to be the longest person with type one without complication..
Diabetes is not about perfection but striving to do your best.....remember even when the floor gets dirty in form of hypers and hypos .....just get a broom ( insulin /food) and clean it up....NO MATTER HOW DIRTY THE FLOOR GETS YOU CAN ALWAYS SWEEP IT CLEAN.........ENJOY EACH MOMENT BECAUSE ITS YOUR LIFE.
Blank
Avatar_f_tn
thank you all for your positive comments..........i have learnt a lot...and as a parent i am the one who is diabetic and will strive to set a good example and educate Karl...on his diabetes...
Blank
Avatar_f_tn
Great attitude, Sarange!! Your son is lucky to have you!
Blank
Avatar_f_tn
I found this site by accident.  I am the mother of a 26 son who was diagnosed at the age of 7.  It pains me to see his lack of concern for his health and his well being.  It appears that he is on a road of self-distruction.  He will not listen and he refuses to take test his blood sugar levels.  
Blank
Avatar_n_tn
I developed Type 1 diabetes when I was 18.  I am now 63 and still going strong.  I check my blood sugar 8 - 10 times a day. I take 3 injections of novolog daily and an injection of lantus at night.   I've had few complications.  I did have a heart attack at 49; however, there is a history of serious heart disease on both sides of my family.  I'm feeling good and diabetes has not stopped me from extensive travel or any form of employment.
Blank
Avatar_m_tn
My mother is 79 and has been a type 1 diabectic since she was 4..75 years..she is still going strong although now she has developed kidney failiure and her heart is not pumping properly and is currently in hospital but I've just been to see her and she is still smiling,still laughing, still enjoying life..she has had many ups and downs over the years  mainly when insulin changed it took while to adjust to it..but she has always managed her own insulin and blood tests and food., I am so very proud of her beven more so at this time as she is quite poorly and yet still thinks of others worse off.
Blank
Avatar_m_tn
My Father was born with T1 diabetes. I have read the majority of the comments in here and some are way off base. T1 diabetes here in Canada is called insulin dependant. T2 is diet and/or pill controlled. My father is now 63 years old and by record so far is the oldest "surviving" diabetic in Canada. He is having major complications at this time though and is currently in Hospital with Respiratory Acidosis. It is true that Doctors love playing with peoples insulin I fight with them everytime my dad is admitted to hospital for care as they try to change his insulin. My father is used in doctors conferences for care and capability of long term care diabetics and I am proud of him to last this long as people who are diagnosed later on in life havent the control over his sugars as he does.
Blank
Avatar_f_tn
MY NAME IS DEBIE , I HAVE BEEN A TYPE 1 DIABETIC SINCE I WAS 8 YRS OLD, I HAVE HAD DIABETES FOR 47 YEARS NOW, I TOO HAVE FACE MANY DIFFUCLT OPERATIONS THROUH OUT THE YRS. OF HAVING THIS DISEASE, MANY DOCTORS CAN'T BELIVE FOR AS LONG AS I HAVE HAD THIS DISEASE I STILL HAVE ALL MY LIBS, MY KIDNEYS, MY EYE SIGHT, I JUST THANK GOD EVERY DAY,,,, IF ANYONE WOULD LIKE TO CONTACT ME AND E-MAIL ME MY ADD IS ***@****
Blank
Avatar_m_tn
Ive been reading all the comments and again are amazed. Ive been diagnosed at 10 and im 46 now...H1A is 5.8 and ive got no complications whatsoever. Diabetes is about eating right (for me that is 0 sugar and 0 starch) and managing my bloodsugar.. Thats it
Blank
Avatar_f_tn
I've had type 1 since I was 10, I'm now 23. I found it hard to control my sugars throughout my student life, (drink being the contributing factor). I now have a career working offshore on the North sea oil rigs. Being offshore, I've changed my ideas on controlling my sugar levels! I feel human again, it's great. The medics offshore keep me on my toes aswell! But I do believe that with good control comes a good life... Why not eh? It makes sense!
Blank
Avatar_m_tn
my mother had diabetes and lost her life recently. I want everyone to know that she could have lived longer if she would have took better care if herself. It is possible to live a long life with this disease you just have to be willing to start changing your eating habits. my mother was only 56 years old:/
Blank
Avatar_m_tn
Wow, this thread is almost 7 years old and still on the internet LOL...I'm 23 years old and was diagnosed at age 2. I have been wearing the pump for about 2 years now. I inherited it from my now deceased father. Knock on wood, I have no "major" complications, other than high blood pressure a few years back that is treated with an ACE inhibitor and exercise, so now it runs around 120/75 most of the time.

My father recently passed away from this disease at the age of 58 after having it for 51 years. He smoked like a freight train until he was 51 when he had his first major complication from type 1 diabetes...blocked arteries and had to undergo double bypass, which then put his kidneys under a tight strain, and thus began the  year streak of dialysis, amputation of his big toe, more open-heart surgery, and stints in his legs to get blood flow to his feet to try and save them from amputation. His heart finally gave out from the pressure of dialysis and not being able to fully quit smoking. He never exercised, smoked a pack of Marlboro Reds a day religiously, and would often go days without checking his blood sugar when he was in his bachelor days (even with the invention of the blood glucose meter)....the point? His bad habits caught up to him quick, and hit him like a brick.

My point to my rambling if I still have your attention is this: no matter how old you are or how long you've had it, or whatever your family history might be...never take a day off from this battle. My dad taught me a lesson I'll never forget. I hope to one day be to retire comfortably and say that I have zero complications. If you have complications, I'm sorry to hear. Sometimes they are unavoidable no matter how much you control it as mentioned in other posts. I'm a 23 year old type 1 diabetic that is not going give up.

If this came off as a sympathy case or a scare tactic, that was not the intention, just trying to make my point of how not treating your condition can lead you down a rocky path. Good luck to you all.
Blank
5807770_tn?1374631177
I didn't sign up for diabetes..I was 12 yrs old..most ppl on this page was younger..nobody asked for it.Your rude-
Blank
6871154_tn?1385597755
I was looking for some info on people with type one diabetes for a long time & came across this blog. I found some very interesting comments & info from everybody who posted, they all are very interesting considering the time this blog has been going on.
I am 73 this month & going into my 63rd year with type one diabetes. I have no complications (very lucky) Have had a pump for 7 years & has made my life alot easier with controlling my A!C which used to run 5.5-6.0 with a lot of low sugers. Now runs 6.5-6.8. I would like to communicate with other long term type one's as I really have not anyone.
Blank
6871154_tn?1385597755
Don't give up read my post below (macatack) I am still very active & do not let anything get in my way just takes some planning. My wife & I have fished in the pacific jungles of Costa  Rica & do a lot of back woods fishing in Adirondacks. We live if Florida & are very active. Never thought I would have to worry about retiring & medicare & here I am. We have been married for 52 years. If you ever want to talk E mail me.
Mac MacKenzie
***@****
Website: http://www.mackenziefamily.com/macattackfishing/index.htm
Blank
Avatar_m_tn
My mother is 85 and has been diabetic for 77 years.
Blank
Avatar_m_tn
I am type 1 for 65 years . can still out run my son. Genetics , exercise and reasonable caution every moment you are awake. Its a demanding disease but can be beaten. Stay away from sugars as much as possible , and try to eat a well balanced diet . Low salt intake also  helps also. We all frig up with our eating habits on occasion so address these as quickly as possible, vitamin supplements are excellent also if you can afford them. good luck to everyone .
.
Blank
231441_tn?1333896366
Dr Richard Berstein is 80 now. He was diagnosed when he was about 6 years old.  He initially had complications, but managed to reverse most of them by excellent (normal) blood sugar control.

He is still working and only looks about 60 years old.  he is a very smart man.

Read his book "Diabetes Solutions", it is really lifechanging if one takes its message on board.  Essentially diabetes has no complications if blood sugars can be kept at normal levels (in the mid 80s for nearly all the time).
Blank
Post a Comment
To
MedHelp Health Answers
Blank
Diabetes Tracker
Track glucose levels, and other diabetes measurements, symptoms and medications
Start Tracking Now
Blank
FoodDiary Tracker
Track Your Daily Carbs and Overall Diet
Start Tracking Now
Recent Activity
139792_tn?1299416777
Blank
Dalubaba commented on Rainbow
Sep 23
139792_tn?1299416777
Blank
Dalubaba commented on gyspy09's status
Sep 10
Avatar_f_tn
Blank
njcelt commented on photo
Sep 03
Diabetes - Type 1 Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Diabetes Answerers
4851940_tn?1385441629
Blank
jemma116
United Kingdom