My husband has had endoscopies, colonoscopies, etc. They never really find anything wrong. (Last time -which was about 2 months ago-they said there was a little redness in the stomach)
He was referred to a Gastrologist who ordered some additonal tests, which our family doc ran. We got the results yesterday - the Gastrin Level is high. The nurse at the family doc said she sent the results to the Gastrologist and we should hear from him in a couple days - mean while I'm going crazy and doing more internet research.
Diarrhea, hurtburning, gnawing feeling, weakness, headaches, nausea, and the increased gastrin level.
The diarrhea has been pretty much going on for years (5 or more). The heartburn, weakness, nausea at least 2 years.
Approximately 4 years ago he was working out if town and had some type of attack - they thought it was his appendix - he was rushed home by ambulance and then our doc and a local surgeon said that it wasn't. They never could explain that episode. (I've heard of others having this diagnosed and then the docs not finding anything - is this a common confussion?)
Anyway heres' my real question: Does anybody have Zollinger-Ellison Syndrome or can anyone tell me if this is what it sounds like he may have?
This is so exhausting - thanks in advance for your help.
Katt: I am including a link to the Combined Health Information Database (CHID), which has an excellent article on ZES. Check it out. I had never heard of this before, but it is very interesting.
I was tested for ZE awhile back(thank god neg.), so naturally I read up on it. It is pretty rare, and is tumors that are found in the stomach. They stimulate the stomache to produce more gastric juice than normal. I believe they call these functional tumors, or something like that. Sometimes it can be hard to find, because the tumors can be really tiny, or in clusters. There are other things to consider also, with the gastrin level being high. I was also tested for a pancreatic tumor (gastronoma), and carcinoid tumors. I also had chronic profuse diarrhea for years, and also had other symptoms that they refer to as Carcinoid syndrome. Flushed face, espec. after eating or alcohol, heart palpatations, and so forth. It could also be something like an over active stomache that makes it produce alot of gastrin. If I remember right they can do a surgery where they cut the vagus nerve or something or somehow tie off some of the ducts that gastrin is excreated from in the stomache. My doctor talked about this, but I heard the word cut and I said NNOOOOOOOOO. If there wasn't a tumor, than I'll deal with it until I can't deal with it no more. Good luck, and let me know what you find out. Mine ended up being Gallbladder to some degree.
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.